Chronic Fatigue Syndrome and Fibromyalgia

muffd2

hi everyone

i have had what has been diagnosed as cfs for 10 years, for the first 6 years taking L-serine kept me in a normalcy of life that i was comfortable with, or rather that i felt i didnt have to do anything more.
The last 4 years are a different story, a worsening of symptoms and chest pains, and feeling like the life is being squeezed out of me subsequently i had to stop doing anything recretional and work wise. Up until a year ago i felt i had adjusted as you do, to the situation. But the chest pains shortness of breath and the cfs symptoms have progressed to a point where i can no longer shower properly and basically sit or lay down all day.
i have not really been given many treatments by by cfs doctor or gp, the L-serine, b12 shots is about it. ( as to the chest pains i have had tests and found that the top left part of my heart does not pump enough blood under stress )

What i am seeking is should more be done for me by my doctors? should i be doing more, the problem i have is that i find it very very hard to do anything myself. The brain cloud and need to do somthing has finally taken me to this forum, i should have done alot more explored every option but as i said its very hard for me and i put my faith in my gp and the cfs specialist wich as i have read in here have done nothign and tried very little.

What can i try to get well? Where should i go? Who should i go to that will explore thes options for me, as the current ones dont seem to have or take any input/ideas.

Immunoligists, gene tests, Allergy test?

regards

Matthew

Chronicfatiguetreatments · Site Admin

hey matthew,
its definately a tough situation that we are all in. Its tough to find a doctor that knows what they are talking about, and if you have a new treatment you want to try its not always easy to find someone that will give it to you.

I have something im doing that is helping me alot right now.
Ive been doing the yasko protocol for a while and im having slow steady improvement (but i do have set backs sometime).

Here is a simplified version of the Yasko protocol
http://www.chronicfatiguetreatments.com/wordpress/treatments/yasko-protocol-simplified-approach-for-chronic-fatigue/

You can get started with them for a decent price, and if you feel some good results, you can always get the genetic testing (expensive) and zero in on exactly how you methyltion cycle is functioning.

Also people were having good preliminary results with valcyte
http://www.chronicfatiguetreatments.com/wordpress/treatments/treatment-of-chronic-fatigue-syndrome-with-valcyte/

there are some comments on that blog post that say where you might be able to get it.

some people here have had good results with the gupta programme
http://www.chronicfatiguetreatments.com/wordpress/treatments/amygdala-retraining-gupta-program-interview/

Its tough but you just have to keep looking, there are alot of people who have recovered, so there is a chance

Good Luck - let us know how you are doing

jaykay · Posted: Fri Jun 13, 2008 4:45 pm Post subject:

i think those are some good suggestions.
Also a doctor named martin pall cured himself with a regimen of antioxidants.
I think coq10, alpha lipoic, and some others. I think you can find the reest of it on google.

muffd2 · Posted: Sun Jun 15, 2008 8:06 am Post subject:

awesome, thanks alot for teh suggestions guys, i will try the first treatment on monday, and i think that the genetic testing is a good thing to try, will upadte as i go

matt

muffd2 · Posted: Tue Jun 17, 2008 10:20 pm Post subject:

hi

with regards to these protcols, do i bring the info to my gp or start them myself?

sisao · Posted: Sat Jun 21, 2008 11:06 am Post subject:

Have you ever had any bloodwork drawn? I'm sure thats not high up on your priority list but it could help point the way to further treatments. Also, has your doctor mentioned anything about anti-viral drugs? Anti-virals have been a big part of my treatment and have improved my quality of life a ton. I alos would recommend CoQ10, as well as Omega-3. Do not give up hope!

parine · Posted: Sat Jun 21, 2008 11:14 am Post subject:

sisao,
what anti-virals have you taken? valcyte?
i was reading about valcyte treatments helping alot of people. I asked my doctor to let me try an antiviral a while ago, but she wouldnt give one to me. hopefully with the new studies out, she might let me try one.

Chronic Fatigue Syndrome and Fibromyalgia

10 Years Of Cfs - Looking For Help