Anyone else wasting(or wasted) the best part of their life?

[StarDust]

well i got M.E when i was 30, so on 1 hand, yea ive had 30 good years, but on the other i really know what ive being missing for the past 9 years,

was hoping to 'in my 30's' meet a girl, get married, have kids, buy a home, and better my job,
all thats happened to me in the 9 years of my illness is for me to give up work, end up in a caravan, no friends, no life, and watch everyone else forfill there dreams and be happy for them, 'which i am'

Yea I'm just 20 and it seems like I slowly lost most of my friends over the last years. Its like I'm slowly isolating myself from the world. Girls used to levitate around me...god if I knew what would happen I would have try to enjoy it more if you see what I mean. Now I'm just wondering if I'll ever have a girlfriend with this illness...

Anyone with CFS ever found a girlfriend/bf? Or even got laid? These kind of thoughts make me wanna die

[neil25]

I'm 24 and i'm having the same trouble getting a girl. I think it's too difficult finding a girl to understand this illness because it affects me so much. I've also had these worries but you can't let it get the better of you. right now i'm working towards getting better i don't worry about money, girls and the rest. If i did i would worry myself sick everyday. Right now i gotta let it go and pray things turn out.

I know its important to talk about our feelings on here, but i don't think this thread does anyone good. It kind of feels like were wallowing in our self pity. I think anyone with cfs must make the most of the time they have no matter what it is they can do. thinking about what were missing on is not helping. sorry if i offend anyone but it was just a thought.

[billoddie]

You are right neil. Its hard, but somehow you have to let go of the worry and all the attenuating ifs, buts and if onlys. I currently have a GF, and this CFS has been a big shock to her. I told her at the start (been seeing her for 18 months) and she thought it just meant i was tired...yeah right. She has seen first hand this illness and all its debilitating complexity. Presently, I am improving very very rapidly. But I think if i wasn't making these improvements, there just would be no point in any relationship. When I had full CFS, i could see my life just ebbing away...today, because of the CFS experience I certainly have a renewed perspective on life. Its such a cliche, but i now KNOW the truth that your health is the most precious gift there is. Dont give up!! I can remember the times when I thought I just couldn't take another moment, let alone another day. I thought that i was never going to recover and the idea of living with this horrible thing for the next 40 yrs or whatever was just unimaginable. You can get better! And you gotta hang on to that truth. Take it easy on yourself...as you already know, you do yourself no good by flying into a flat spin over all the things you are missing out on. Flip the coin over and look at your life from a positive side. FIND the positives in your life, no matter how small they are.

[wolfe]

neil25 yea can tottaly understand you regarding negativity, im personally very posotive about my life in general, ive since having M.E passed my motorbike test (which i couldnt be bothered to do before), given up smoking and a few others posotive things so im always looking to better my life as best i can,
but,,,,,
when your CONSTANTLY bombarded with negativity from others (healthy) people regarding this illness its hard to stay posotive, ive even 'whilst in hospitol being treated for ITP' being called LAZY from a nurse because i struggled to awake in the mornning (even though i was drugged up on steroids and various other drugs), i personally find it hard work to stay posotive in this climate we live in so if im feeling down a little im sure im allowed to be
i like these kinda forums, it just proves im not going mad, yes theres others out there feeling as i do, and i can read there experiences and feel comforted that its not just me, i sometimes get scared of my symptons and the docs have no clue as to whats going on, so to see someone else with the same symptons as me is kinda comforting, i had to see a psycologist last year because my head was so messed up from this illness, and how i was treated as a constant outsider by people, but i spent most of my time with her explaining my illness and how it affected me and my life, i just feel theres to many people (including professionals) out there that are so unaware of our illness and symptons,

and its good to get it of your chest once in a while

[jadey]

Hi,
I'm 18 and have been ill since I was 6 so I guess you could say I am wasting the best bits of my life. This does really get me down sometimes but it could be worse, we could have something definitavly terminal which is definately a waste of your life.

At least we're here! Yes, I can't go to college or go out like others my age but if we focus on that all the time we're just going to get depressed and I get that enough as it is! I just plan to be one hell of an outrageous O.A.P!! Funky scooter, leather jacket, toyboy, the lot!

Plus, there are careers (well sort of) that you can do from home or that are low energy...you just have to look for them. For example, I really want to be a writer so I do that as much as I can whether it's writing for ME magazines or just random stories I try and do something everyday even though I'm in bed most of the time, and in a wheelchair when I'm not. There are oppertunities everywhere...you just have to look.

Keep your chins up everyone...it could always be worse, and just think how outrageous you have the right to be once you're better!!

Jadey x