Anyone else wasting(or wasted) the best part of their life?

[StarDust]

because of chronic fatigue..

[neil25]

well i'm only 24 and i had a very promising career ahead of me but now its wasted away at home. makes me real sad the doctors need to do something and find treatement.

[CS1]

[quote="neil25"]well i'm only 24 and i had a very promising career ahead of me but now its wasted away at home. makes me real sad the doctors need to do something and find treatement.[/quote]

Im afraid i dont think docs will come up with a cure dueto complexity of CFS.

There are a few clinics out there that canhelp though.


Regards
Cs

[neil25]

u never know there may be some treatement which is developed in the future which can improve our symptoms.

Which clinics can help? i already take supplements, homeopathic medicine, eat a good diet, get good rest, get massages, do yoga and meditation and use the Gupta programme. i don't see how a clinic can help further? didn't you just say there was no treatement.

[Jj85]

Neil,

The fact is, this disease can turn around at any time, especially for young people. I was on a fast and vicious downward spiral, and then, slowly but surely, things DID start to turn around. I'm not all the way better, and who knows, maybe I never will be, or maybe I'll get worse again. But I do know that around the time that I stopped worrying about how much CFS was ruining what would have otherwise been a really fun time during my life, was the time that I started to get better.

It sounds like stress and anxiety may be a big part of this for you, as they definitely were (and still are, but in a different way not relating to the illness) for me. I really suggest talking to your doc about getting prescribed some sort of anti-anxiety medicine (I take Klonopin), even if you don't think you have anxiety.

[StarDust]

Hey neil, good know I'm not alone in that situation, although I don't wish this to anyone. When I think of what I could be or could have done in my life by now if I wasn't restrained by this tiredness all the time makes me feel pretty nostalgic and regretful for some reason.

Btw guys I don't think you should encourage people to take antidepressants for chronic fatigue, but that's just me.

[static]

I'm 45 and I have had CFS for over 25 years. So, to answer your question, yeah sure. I have never had a career, and in the last ten years I haven't even had a job. I don't have any children because I couldn't take care of them.

But to be honest, even though I'm not a particularly optimistic or glass-half-full type, I don't look at it that way. I still have -- and have always had -- what matters to me. I have ideas and interests, and generally a lot of things to think about. I read a lot. I'm interested in politics and social justice. I also like reading essays and memoirs, anything that offers insight and knowledge into how people think and how they live their lives. I'm often too tired to do anything but watch TV but that's okay. There's a lot of good stuff on TV. One of my favorite shows is Globe Trekker.

I like my guilty pleasures. There's a band that I absolutely adore and have been a fan of for 15 years. As hard as it is to get out, I still put myself through whatever I have to to go see them play live when they come around.

Years ago, I went to art school, and I'm still very interested in art. I'm too tired to do any serious artwork, but I sometimes make things, usually out of fabric and thread, like little embroidered pillows, or dolls.

I live with my boyfriend and a friend, and our cat, and we have an agreeable little household. We play Scrabble a lot. I visit my parents, sister and nephew about once every one or two months and stay there for a week at a time.

This may not sound like much, but I have an okay life, and I manage to be grateful for what I have.And yes, I get depressed and anxious too.

[CS1]

[quote="neil25"]u never know there may be some treatement which is developed in the future which can improve our symptoms.

Which clinics can help? i already take supplements, homeopathic medicine, eat a good diet, get good rest, get massages, do yoga and meditation and use the Gupta programme. i don't see how a clinic can help further? didn't you just say there was no treatement.[/quote]


I think keeping a good diet and adding a few supps is a good idea.

I think the Gupta programme is great - for me it isnt enough Ive added other things to make me MORE Parasympathetic - this has been the key for me!


The clinics have alittle more know how in terms of detox and trauma issue.

Regards
CS

[neil25]

thanks for posting static and letting us know. i suppose all people with cfs will feel like they are wasting part of their life due to their restrictions unless they didn't do much before theygot ill. i kind of got an acceptance to it now and i now know that life is a bit short as anything can happen in the future so i try to live it up the best i can if that means drinking every now and again well why not you never know when ur gonna go even for healthy people. one of my friends at uni who is only 19 died in a car crash this summer it really does make me think of the fragility of life.

[alicewoolf]

yes every day I feel like I'm wasting my life with this horrendous illness. some days I wonder whether I can even carry on. CFS has taken my life away from me

[Recovery Soon]

I am an award winning television creative professional who was earning well over 130K (US dollars) in my early 30's before CFS struck.

I was also in ripped physical condition, and could outpace anyone.

Since CFS, I abandoned a career that I dreamed of from when I was a kid, where I was a rising star, and have accepted my temporary cessation of exercise til I get better.

There are times when I think self-pity thoughts...and fewer times when I speak them out loud.

We all have.

But I don't think this thread is helpful for anyone.

Let's be honest it's wallowing...and breeds nothing but negativity.

Yes, it's nice to know you're not alone, and others are facing the same obstacles, and we all already know that...but misery loves company.

Think of this as the ultimate life test. If you were cured tomorrow, would you like to know that you handled this horror with dignity and strength?

Or that you mentally folded and whimpered through it?

The truth is we may be cured one day, and we will have to live with whichever legacy we are now choosing for ourselves.

[neil25]

i totally agree with you, there is no point in wallowing in our self pity. i'm trying to stay off the forums for a while cos it really doesn't help. I think just about everyone has some sort of hope somewhere deep down that they will get better one day. If no one had that thought they would probably be in a casket by now. To get through this each day we all gotta be positive otherwise we won't make it trust me ive had some rough days where every sucicidal thought goes through my head, but i don't worry no more my life is in gods hands and whatever happens will happen.

[static]

I don't think it's wallowing, and I think my post was quite positive. I'm much more interested in the ways that we can cope and live our lives than in discussions of supplements and unproven treatments, which I'm generally very skeptical about, and which dominate forums like this one.

How each of us lives, our philosophy, and what interests us and keeps us going are much more interesting topics, in my humble opinion.

[Recovery Soon]

I don't believe anyone referred to you or your post.

[static]

You referred to the thread as a whole. You wrote:

But I don't think this thread is helpful for anyone.

Let's be honest it's wallowing...and breeds nothing but negativity.

So I believe that included my post, which is part of the thread? My comment was simply that I don't think this is necessarily a thread about wallowing or breeding negativity. It doesn't have to be. But perhaps it's your intent to breed negativity by replying to me unkindly?

No hard feelings. I know we're all dealing as well as we can. I wish you only good things.