by laura » Mon Nov 23, 2009 6:15 pm
Get all the medical tests you can get....rule out every illness under the sun, then you will know whether or not you have CFS, that is what happened with me.
Every medical test was negative, and I was tested for everything. Doctors treated me like I was a malingering hypochondriac. I searched for 3 years for a diagnosis. Finally diagnosed myself when I saw all my symptoms listed on Mayo Clinic's website. Adderall is a stimulant like Provigil that enables me to work again and have a life. Provigil did not work for me.
Recently there was an article in my local newspaper called "Chronic Fatigue syndrome: Don't wait for a cure." the man who wrote the article described his 30 year struggle and how by changing his lifestyle he improved over the 30 years...I was so outraged at his advice that we had to heal ourselves when doctors don't even recognize CFS as an illness and we don't kow what our diagnosis is, I wrote a letter to my local newspaper and they are going to publish it this week....at least some of my rage and frustration will be heard....
Here is the letter:
Dear Editor,
I was outraged by Mr. Sklar’s admonishment to “get on with the hard work of healing themselves” in the 11/17/09 article, "Chronic fatigue syndrome: Don’t wait for a cure." You need a diagnosis before you can heal yourself.
For 3 years I searched for a diagnosis. As a single parent, being unable to work for months was terrifying. Medical tests were negative; I was treated like a malingering hypochondriac by 15 doctors. At my last hope visit to Mayo Clinic, I was diagnosed with "depression." Antidepressants have no affect on the harrowing symptoms of CFS.
Later, I read Mayo Clinic’s website re: CFS. There was the list of my mystifying symptoms. I had CFS. Psychostimulants were one recommendation. A CFS sufferer told me about the drug that helps me function.
The photo headlining Mr. Sklar’s article, of a man slumped at his desk, perpetuates the misconception that CFS just means you're tired. Mayo Clinic's website lists 28 symptoms, fatigue is one, the rest are far worse. CFS should be called, FLD24/7, Feel Like Dying 24/7.
I don't expect a cure. My greatest hopes are for a treatment protocol and for doctors to understand the impact CFS has on every aspect of a sufferer’s life.