worried about some of my symptoms

[neil25]

I'm worried about a few of my symptoms as I havent heard many others with cfs with these symptoms. I get like a sort of tight feeling around my face, general sore mouth and teeth, and i have quit bad balance problems. I've had a mri of my brain and it came back clear. Does anyone know what this could be?

[Chronicfatiguetreatments]

I'm worried about a few of my symptoms as I havent heard many others with cfs with these symptoms. I get like a sort of tight feeling around my face, general sore mouth and teeth, and i have quit bad balance problems. I've had a mri of my brain and it came back clear. Does anyone know what this could be?

I have some balance problems, mostly when im feeling really spaced out. Im always running in to stuff.
Not sure about the other stuff though.

[alicewoolf]

I think feeling spaced out and having balance problems is quite common in CFS. i know I experience both when I haven't slept enough or if I have coffee... As for the pain in teeth, mouth etc it sounds like fibro to me. If the scan came back clear there's no need to worry though I know how difficult it is...

[elisabeth]

Well, when I had fibro (related to CFS) I had TMJ at the same time. This could be responsible for the soreness of mouth, etc. Tell your doctor and you can get it checked (or they can tell you if they think it is something else). My running into things/ balance problems also went away when I got well.

what got me well? for me, it was: accepting my brain was tired (not dangerous, don't worry!) and i learned to deal with this by reading hope and help for your nerves, by relaxing (baths, etc.), getting sleep (i used valium for a month or so and then used nighttime baths, and then used california poppy as necessary. i recommend none of this as i am not a doctor and only your doctor can tell you what is right for you). learning not to worry about my illness helped me once i knew that i didn't have any other problems besides a tired brain. also, get your digestion checked. it turned out i had an ulcer that kept waking me up in the middle of the night long after my other symptoms were healed. you may not see yourself in the hope and help for your nerves book but it certainly helped me beyond belief once i got over the idea that it didn't sound exactly like fibro. that guppta (sp?) program everyone is talking about would probably help, too. self-hypnosis was great for me, too.

[annie]

I can relate to those symptoms Neil, they are horrible. I used to think I was having a stroke with the face thing, not true. Dr's have never understood what I am talking about, we have so many strange indescribable symptoms don't we?

[superlai00]

Hi,
i suggest you can see your naturopathic doctor to see if you are toxicity overload. I personality think body cleanse, liver clease, and juicing a lot and healthy green less meat diet is way to improve your symptom

[*Emerald*]

I have the same Neil and as Annie says, i thought i
was having a stroke too. Even my tongue gets sore and if
i yawn or chew food for too long, i feel like my jaw is
going to lock on me (makes dental work very uncomfortable too)

When i stand up, close my eyes and test my balance, i sway like a drunk,
its not much fun. MRI was normal, bloods are normal. ENT found nothing.

Ive had five months of hell with teeth, but for this, my teeth gums and face
hurt on a regular basis. Today my leg is so painful it feels like ive had a scald
which is far from pleasant. Skin is normal to touch, not sore to touch, yet
my clothing makes my leg feel hot and like i had boiling water on it. Sounds
mad doesnt it!!!

Hope you feel a bit better soon. Keep on with the stops and soften and flow
while your worried about the symptoms.

[Shorty]

I was told by a dental surgeon that there has been links between jaw soreness and zoloft. Just my 2 cents worth. I hope they work out what it is really soon for you.

[neil25]

Hi Annie you just described my symptoms word for word. This is exactly how i feel with my jaw and the boiling hot temperatures. I suppose these symptoms don't scare me anymore they just annoy the hell out of me and are really uncomfortable. espeically the tight jaw and face.

[*Emerald*]

Do you get breathlessness Neil? this cold weather is really affecting
me. I have asthma but this doesnt feel the same. Im beginning
to wonder if its toothpaste affecting me
(clutching at straws maybe, as we tend to do to find a reason
for these daft symptoms)

im being driven mad by a sore shoulder and arm too. The muscle
hasnt healed from an injury 5 yrs ago and this past 6 months or
so its been so annoying and painful.

Its not long till the spring and warmer weather, hope we all feel
much better to enjoy the sun when it comes !!

[neil25]

I used to get breathless when walking but not so much anymore. I don't have asthma which is probably why.