what do you do to lose weight

[alicewoolf]

thanks Annie. good to know I'm not alone in having a horrible time. my nights go like this: 9pm get into bed. awake until 12pm fall asleep after numerous trips to the bathroom. 3am wake up. 4am still awake go the loo again. take a sleeping tablet. wake at 7am feelng unbelievably awful, in terrible pain and exhausted beyond imagining. And on top of that? NO-ONE, not one person I know has offered any help or support. frankly I'm disgusted with my friends and family. having to foce myself to go out ad get shopping etc.
Am going to put my anti-depressants up again. they are the only thing which help me sleep and feel human again. hope things improve for you too. hang on in there. It will get better. it has to...

[lili2701]

oh dear I'm so sorry to hear you are so bad guys. I have to say I dont suffer from severe CFS, I almost have a normal life, or at least half of the time. I could work for a few years, although it's been so hard at times, I've never been bedridden.
Alice, how come u need the loo so often? U have got loose bowels? (if I can ask) How come u can't sleep apart from needing the loo? is it always like that? have you always had insomnia?
I can sleep fine unless I'm stressed about something (like if I have to do sthg the following day then I wont sleep a wink), otherwise I also go to bed at 9 and sleep till 7-8.
I'm sorry to hear about your bulimia issues, it's terrible. did you also put things in your mouth and spit it out? I do that when I really want sthg but can't, like tonight, I wanted some cake in the fridge, I put it into my mouth and spat it in the toilet but it's hard and I happened to swallow it in the past. It sounds ridiculous doesnt it?
It's hard to be positive when everything goes wrong but I believe in spirituality, that we're going through this for a reason, I dont believe we are victims, I beleive everything happens for a reason.
I can't believe no one is helping you Alice, how come?? If I lived near you, I'd come and help you, it's terrible to be alone like this, supporting the illness and the feeling of loneliness.
I feel very lonely in this illness, I dont feel that anyone really understands, some try to, others judge me but I've decided to try to stop caring about what people say. I'd like to have a bf also, I really need love and affection, have been single for 7 years now and I'm only 28, I dont even remember what a kiss feels like, it's pathetic but I know I'll go through this and when I'm there I'll look back and smile.

btw do you live in the UK?
I always wanted to live in London for a few months but had to forget about it cos of CFS..

Girls, have a nice evening, we could open a thread just for our daily mood or if it's too personal, send each other pms when needed.

I send u a lot of energy! see yourself happy and healthy as often as possible and ur mind will tend to go that way!

hugzzz

[alicewoolf]

Hi Lili thanks for your sweet post. it cheered me up. As far as sleep goes I find I get into a vicious circle where the CFS gets worse then I get terribly anxious and cant sleep. I go to the loo to pee a lot (I always feel I need to for some reason, but having put up my antidepressants up, its a bit better now). I don't suffer from severe CFS either, but I do get bad bouts when I overdo things and think I can push myself like crazy and then before I know it I'm ill again and back in bed.
Yes I do live in the UK, in London and everyone's so busy apparently that's why they don't offer to help. But my boyfriend is lovely so I guess I shouldn't complain too much. I definitely don't see myself as a victim. I just get angry when people are so selfish!
And the bulimia is history now (thank goodness) just trying to eat really healthily at the moment. Be careful about spitting things out- it's a slippery slope in my opinion!!
and spirituality definitely helps. Sometimes I pray to God to help me through all of this. I am not overly religious or didn't used to be but I find talking to Him makes me feel less lonely.