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XMRV Confirmtion by FDA and NIH

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Re: XMRV Confirmtion by FDA and NIH

Postby crmfghtr » Mon Jun 28, 2010 10:55 am

Well I think there is valid information here, however not holding my breath. In a few short months it will have been a year since the big announcement about XMRV and ME. And here we still sit, debating and wondering, as we have been doing for years. All WPI has to do is show a group of people who have been significantly improved for treatment and we would all give it a shot, until thing, it in my mind is still just a hope. Which isn't all bad
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Re: XMRV Confirmtion by FDA and NIH

Postby Chronicfatiguetreatments » Mon Jun 28, 2010 12:27 pm

gu3vara wrote:What is the simplified methylation you are doing guys? I read on it on once and found it confusing.

it is really confusing to understand. I paid alot for the genetic testing around 4 years ago. I couldnt understand, so i had to pay a dr. to interpret it.

Pretty much the supplements that i take are l-methionine, hydroxycobalamin b12, a certain type of folic acid (folapro), phosphatidyl choline.
I think thats it. Its not a fix, but it does help some.
I tried to get off of it and i was a total mess.
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Re: XMRV Confirmtion by FDA and NIH

Postby gu3vara » Mon Jun 28, 2010 8:03 pm

Chronicfatiguetreatments wrote:
gu3vara wrote:What is the simplified methylation you are doing guys? I read on it on once and found it confusing.

it is really confusing to understand. I paid alot for the genetic testing around 4 years ago. I couldnt understand, so i had to pay a dr. to interpret it.

Pretty much the supplements that i take are l-methionine, hydroxycobalamin b12, a certain type of folic acid (folapro), phosphatidyl choline.
I think thats it. Its not a fix, but it does help some.
I tried to get off of it and i was a total mess.


Thx, are you having shots of hydroxycobalamin? I tried to have those for months and it just isn't available in Canada. Lozenges are also though to find
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Re: XMRV Confirmtion by FDA and NIH

Postby Chronicfatiguetreatments » Mon Jun 28, 2010 10:21 pm

Chronicfatiguetreatments wrote:Thx, are you having shots of hydroxycobalamin? I tried to have those for months and it just isn't available in Canada. Lozenges are also though to find


I do shots 2 x a week and lozenges. I get the lozenges here:
http://www.holisticheal.com/hydroxy-b12.html

it's amy yasko's site. She's into methylation supplements, mainly for autism.
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Re: XMRV Confirmtion by FDA and NIH

Postby gu3vara » Wed Jul 07, 2010 10:59 am

Can you believe they put a goddamn hold on that study and that government might probably put it on a shelf...all this while the negative CDC study is out

I just simply can't take the politics of CFS anymore, that's simply awful to play with us like this and try to hide this disease, maybe when 30% of the population will have it they will finally realize the shit they've done ....
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Re: XMRV Confirmtion by FDA and NIH

Postby Chronicfatiguetreatments » Wed Jul 07, 2010 1:11 pm

its crazy, im trying not to pay attention to it anymore because it so ridiculous.

I thought they were just going to do additional testing on the nih study. Are they going to shelf it now?
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Re: XMRV Confirmtion by FDA and NIH

Postby gu3vara » Wed Jul 07, 2010 2:54 pm

Those are rumors but I wouldn't be surprise at all because of the CDC position over the past 20 years that CFS is treated with antidepressant and GET.

Look at this great freelance reporter, she has contact inside the NIH :

http://www.cfscentral.com/

I hope she continues to investigate on all this crap going on
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