MAJOR MEDIA CAMPAIGN ON ME/CFS!

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MAJOR NATIONAL MEDIA CAMPAIGN FOR CFS.

WANT ATTENTION, FUNDING AND REAL RESEARCH FOR ME/CFS?
MAJOR MEDIA CAMPAIGN LAUNCHED!

Please see the Facebook page located at: http://www.causes.com/causes/511536

A group of ME / CFS patients and patient advocacy organizations are forming a patient-driven advertising campaign to address problems in medical care and access to social services. This will be a bold, yet responsible campaign calling for a change. We already have other organizations that have shown interest in signing the advertisements, as a joint message.

As you may know, XMRV news is an opportunity for us to take ME/CFS into the public consciousness. We want to capitalize on this new discovery to create change. We will carefully frame the message to not inflame fear but to create awareness of the problems people with our illness face.

Recent changes in policies at some government agencies, we feel, will create a no-win situation for patients filing for disability and does not take into considering much of the research that has been established with our illness in the past 20 years.

If you want more details on the situation that prompted this, either read the Facebook page or let me know. Contacts for this critical campaign are provided on the Facebook page in the “Administrators” section.

We ask that you take a look at the project and see if you can lend your support. Please consider helping us in the following ways:

• Donate
• Get others associated with your group to donate
• Get friends and family to donate
• Offer your skills, time, energy or resources
Please go to: http://www.causes.com/causes/511536
You will notice that in a little over a week we have raised over $1,100 and membership is over the 650 mark. These numbers show that this initiative is what the ME/CFS people believe is needed NOW at the most critical point in our disease’s history.

If you would like to donate but not through Facebook, then you can do so through the PayPal link at PANDORA's site http://www.pandoranet.info/ The PayPal link is at the top left of the home page. All donations made through the PANDORA PayPal link will funnel money straight through to this campaign. The PANDORA site already has the infrastructure in place including the PayPal account. When using the PayPal account on the PANDORA site, please ensure that you put "Our Voice, Our Message, Our Lives" in the description. This ensures that donations go to this media campaign. The hardworking folks running this Campaign are getting the Paypal link fixed on their Facebook site, but until that point, please use the PANDORA PayPal link.

Thank you all for making a donation and becoming a member for this super critical national media campaign. Keep an eye on the Facebook page for this campaign as there are updates from the Administrators and you can watch the members and donations climb - and climb toward the goal of getting a strong message out at this super critical point of time

Be sure and enter "Our Voice, Our Message, Our Lives" in the Description to make sure the money will go to this campaign. We welcome other organizations setting up their own donation fund for this campaign. Contact our Administers for transferring donations to this media campaign. Thank you!!!