The positive XMRV paper just came out - here's a link

[Chronicfatiguetreatments]

http://www.cfscentral.com/2010/08/fdani ... thing.html

They found (i think) 8 different types of mutated XMRV. So that might have been why they had problems detecting them in the other studies.

[Chronicfatiguetreatments]

Here's some more links:
http://www.cnn.com/2010/HEALTH/08/23/ch ... gue.virus/
http://www.businessweek.com/lifestyle/c ... 42400.html
http://www.nytimes.com/2010/08/24/healt ... tigue.html

I think this means, things are going to change;)

[neil25]

thanks for posting really appreciate it. This side of CFS really interests me.

[gu3vara]

Anyone still think it's not infectious, seriously?

Great day for all of us really!

[Chronicfatiguetreatments]

i was interested in the first study, but i think this one is so much more important.
Now that its alot closer to being confirmed, they have to worry about the blood supply being contaminated, so i think alot of research is going to happen pretty quickly. Because they are worried about themselves now.

[neil25]

finally some proper evidence on cfs!! This is positive for anyone with this illness. Lets all pray some sort of treatement can be made.

[gu3vara]

Have you guys seen Dr Deckoff-Jones blog?

http://treatingxmrv.blogspot.com/

Her daughter and herself both have CFS and they are both greatly improved after 5 month and a half of HAART.

Time might tell it's not the ideal for CFS, but it does seems to work pretty good for some, and especially kids, I heard of a couple of good reports.

It's looking good for us guys, at last !

[Chronicfatiguetreatments]

Dr Deckoff-Jones blog

Ive come across it before. Last time i checked it didn't seem like her or her daughter were doing much better.
But in the most recent post it seems like they are both doing alot better.
That was one of the reasons i was skeptical of XMRV, because of the people who were taking anti-virals and not really improving. Maybe it just takes a while. It says she's been on it for 5 1/2 months.

[gu3vara]

Yeah, but if XMRV is a slow replication retrovirus like Mikovits postulated, than it will take a couple years to significantly reduce the load. HAART doesn't kill infected cells. If it0 blocks replication effectively enough then load will reduce over time because the average cell in the body die after 2 ou 3 years (and immune system cells much faster, like 2 ou 3 months if I remember correctly).

I think the key to speed up the outcome will be to mix those meds with immune modulators like Ampligen, gcmaf or something else.

Andrea Whittemore is very significantly improved on an unknown treatment too, and considering it seemed to happen fast for her, I suspect HAART have nothing to do with it. Hopefully we will know more about it sooner than later. It could very well be gcmaf.

[Chronicfatiguetreatments]

Andrea Whittemore is very significantly improved on an unknown treatment too, and considering it seemed to happen fast for her, I suspect HAART have nothing to do with it. Hopefully we will know more about it sooner than later. It could very well be gcmaf.

Yeah, i saw a video of Andrea speaking at the opening of the WPI this week and she seemed like she was doing pretty well. Im really curious to see what new treatment she's on.
I read about gcmaf a little bit after you posted about it. That sounds pretty amazing if it backs out, for all types of infectious diseases.

[gu3vara]

Even the most ferocious defenders of the psychological nature of CFS seem to do a 180 now. Van der Meer was implicated in a negative XMRV study last spring and now he seems to believe it's time for clinical trials to begin.

OMG, that's unreal!

Here's a post from another forum by someone who watched the interview with him and De Merleir :

Summary Van der Meer:
''World-shocking" "World-shocking because there is a controverse about the role of virus(ses) in CFS"
Reporter: "But the role of virusses is suspected for a long time already, by some even considered as proven?"
''Proven it is not, suspected for a long time yes. As long as we have known virusses were suspected as cause for CFS but untill NOW there hasn't been found a cause of CFS"
(A little confused with this statement. Does he really imply XMRV/MLV is indeed the cause for CFS? Or does he mean it hasn't been proven yet that XMRV/MLV playes a role in CFS)

Reporter: "The virus that has been found in an American study (e.g. Alter) is a comparable virus as the HIV virus"
"Offcourse there are some important differences. There has been told by people with CFS, you don't die from it, but maybe it should be better if you did, while with an untreated HIV infection you die. That's clear. HIV is a deadly virus infection. This is not a deadly virus infection BUT IT IS SERIOUSLY DISABLING and it'ss a nasty syndrome"
(HE LITERALLY IMPLIES this virus causes this syndrome!!!!)

"It's to early to treat with ARV while we don't know the virus very well yet and don't know how to how to treat it yet (ie. which medications) . It are potentially toxic drugs"
Morally I have to agree. While I understand we all want to get better, we first should know which ARV therapies are best. Let the clinical trials begin!

Pretty shocked (BUT O SO HAPPY) about this appearance of Van der Meer. Do they finally begin to understand there is nothing to downplay anymore. The evidence is getting to big!

You saw de Meirlier was really happy about this news and finally it seems the shitstorms against him turn into deserved applaus.

Further, thanks cansado (Mariska) for your appearance. I hope EEN VANDAAG showed exactly the core of your story you want them to show.



Massive wind of change coming on

[Chronicfatiguetreatments]

Im actually optimistic for once, up to this point CFS research has been one huge cluster f**k. (thats really the only word that can really describe it) For the last 10 years its been a roller coaster. Everyone is going is completely different directions. Things like epstein barr, mycoplasma, hhv6, HPA axis, hydrogen sulfide, ampligen etc. Its been a never ending string of weirdness.

At first i wasn't that happy about XMRV because i don't really want to have a virus, that i will have for the rest of my life, but honestly i'll take anythign right now. I think this 2nd positive study is a huge deal, and ive heard there are a couple more positives coming soon.

And i think things will move alot quicker, because of the blood supply issue. That is something that will scare people that arent sick, so they will be force to do something about it.

[annie]

This does sound to be very good news, at last. We now need high profile advocates to get the publicity out, shake and shock people about this illness now there is more and more proof that it is not all in our minds. People, rightly, became terrified of AIDS and everything moved ahead faster and faster. There is money to be made now from this illness, a factor that, perhaps sadly, is bound to make a huge difference.
I really hope the U.K is shamed into agreement that we are not psychiatric patients nor simply neurotic people.

[Chronicfatiguetreatments]

I really hope the U.K is shamed into agreement that we are not psychiatric patients nor simply neurotic people.

Belive it or not, before HIV was well known, they told patients that they were just "overstressed". Sounds familiar

[Chronicfatiguetreatments]

http://www.youtube.com/watch?v=ep0uZwlL_Rw

i think this is the interview guevarra was talking about. (its subtitled)