by Wynton » Tue Nov 09, 2010 11:56 pm
Hey, sorry I won't really be of any real help to you, but I can say that I certainly do have the EXACT same problem!! I'm a 19 year old guy and got CFS (or what I presume is CFS) 2 years ago, so we're both pretty young. Honestly, the hunger was one of the very first things I noticed, and was at first more annoying than the fatigue. I actually was trying to bodybuild at the time and was therefore in the business of counting my calories, and was very alarmed when my daily calories started going up to 4,000 - when I was trying to lose weight! (I'm not heavy, about 160, that's just how you do bodybuilding, keep gaining and losing). I would try to control my eating, only to get so hungry that, like you, I would find myself eating so much that my stomach hurt. Often this would happen in the middle of the night. I needed to carry food with me at all times lest I risk almost collapsing from hunger, or embarrass myself in front of friends by obsessing over finding something to eat in the middle of an activity.
For me, the biggest trigger seemed to be activity. I was very active, and after a soccer game or whatever I would eat for several hours straight and then go to bed. I've been less active (read: completely immobile) for about a year now due to the fatigue, and though I still eat more than most people while barely moving all day, I wouldn't consider my appetite a major problem anymore compared to the fatigue. However, it is very confusing to me that this occurred, in particular because hunger is not listed as a symptom of CFS (in any resource I've seen.) Sure, people complain of their appetite because fatigue and immobility make weight gain very easy. But to put more calories in your body than is humanly necessary and NOT gain weight... well, I really don't know what to say.
Though this I can say -- good luck!