CFS and the multiple faces of chronic fatigue

[Wynton]

Thanks for the reassuring words neil. By the way I wanted to ask you, did you ever resolve that shakiness thing that was going on with you?

Also I saw the thing about ken leaving the forum... I can't help thinking that discourse like this was responsible. Sorry about that, ken.

[*Emerald*]

You ought to be holding your head im shame Neil. Ken has helped so many of us, with or without gupta. So who helps now? He has been ill far longer than most here which makes his advice invaluable in my eyes. He has spent a fortune, in time, energy and money researching trying and more often than not failing. The one thing that he felt helped alongside other methods was the Gupta yet you challenge him and stamp your foot and rant like an angry toddler at the mention of it. You have been ill a small few yr and feel desperate, how do ya think we feel after being ill one or two decades? The forum has lost one of its best advisors thanks to the hostility towards gupta.

[neil25]

Hi emerald everyone is entitled to their own opnion on the forum. It was Ken's choice to leave the forum not my fault. Sorry but you can't blame me. I have done nothing wrong but voice my opnion on gupta and my experience of it. It sounds like many of you are desperate for any sort of cure since you have been ill for a long time probably explains why you believe in Gupta it makes more sense now.

Im getting sick of being attacked all the time just because i don't believe in Gupta. Its a free country give me a break. I'm sure that gupta hasn't worked for others on here im just one of those people.



Wynton The shakiness is still there although i've been taking vitamin D which has helped it a little. I still don't know what it is. Maybe serious Vitamin D deficiency althought i've been taking vitamin D for a long time now only stopped it for a week.

[Wynton]

That's good to hear neil. I was very vitamin d deficient about a year ago, and I started taking tons (like 80000 IU) of vitamin D on doctor's orders. However, I didn't really feel the effects. Although it definitely is true that vitamin d deficiency is never a good thing and is supposed to help your energy.

Emerald - I understand where you're coming from with all this. Ken is definitely entitled to his opinions. Also as neil has said before, we all respect him for soldiering through CFS for all these years. Quite a feat!!

However I think there is a clear divide between some of us: some of you I suspect have been here for a while. I'm not sure how you found this forum but I bet there was some kind of connection you had to people on the forum, or maybe to ChronicFatigueTreatments.com itself (correct me if I'm wrong). On the other hand, I (and mabe neil?) just found this forum on Google. I recently decided I had CFS and wanted to talk to some people about it, and this forum actually comes up very high on google. So I am not really part of any kind of community, virtual or real, like you may be, Emerald. I merely am a college-age guy surfing the web. Most of what I know about CFS I have learned on my own through my own browsing of the material available in online sources.

I'm just saying this all so you can hopefully understand why it is strange to be hopping around the internet, learning what I can about chronic fatigue, and finally joining an online forum only to find the people there saying completely different things about CFS than the rest of the internet is saying. Well, not completely different, but you must understand that Gupta does not exactly have a large internet (or even clinical) presence in the world of CFS. When I was first told to look up Gupta I had a hard time finding him with google - and that's coming from an internet savvy teenage guy. (In fact, if you search "Gupta chronic fatigue", the first several results are from this forum.)

So maybe you can see where Neil and I are coming from. Sorry for any disruption we've caused, but also I've noticed that we're not the first people to point out the prevalence of Gupta here.

[FutureHope]

I have just joined this forum, so please forgive me if I am posting in the wrong place. I was diagnosed with chronic fatigue syndrome in 1992. I had always been a very healthy person before this. Doctors back then acted like I needed a psychiatrist and kept trying to give me anti-depressants. I kept telling them, "I love life, I am not depressed, I am sick!" Everything I read back then said there is no cure and I was hopeless. I had every symptom listed except joint pain. I had two small babies at the time and although I was not suicidal, many days I wished I was dead. The reason I am here is to let CFS sufferers know that there is really hope! I had given up on ever getting well and just tried to make the best of every day for the sake of my husband and children, and then gradually in 1998, after six years of illness and tears, I suddenly began feeling better and eventually got well over a period of a few months. The only residual effects are that I cannot do strenuous aerobic exercise (although I walk briskly on my treadmill and do stretching exercises) because the strain of an accelerated heartbeat seems to have an adverse affect on me, and also my body thermostat still seems to fluctuate irregularly at times. But I considered myself a healthy person and no longer a CFS sufferer. I wish someone had told me back then that someday I could possibly get well. Don't think this illness must last forever. Mine was a terrible, terrible case, but I am healthy now.

[Wynton]

Mine was a terrible, terrible case, but I am healthy now.

Cool! Great to hear that!
It just started happening, out of the blue?

[aannc44]

Nothing is ever that simple. It has taken me nearly a decade to find a regime including medications and many lifestyle changes to help curb the symptoms of depression and anxiety that I have long suffered from. In addition, I was diagnosed about three years ago with fibromyalgia and chronic fatigue. After experiencing exhaustion, muscle fatigue, stiffness and soreness and many other sometimes debilitating symptoms (Of which I just attributed to the depression), the diagnoses was made. The accumulation of symptoms can all "point the finger" at one another as to where the true etiology lies. At this point, the current research is no where near the point of making any official statement regarding etiology, let alone an absolute form of treatment. For this reason, I like many others continue to go to battle daily fighting the symptoms and searching for a cure. Relief from these symptoms no matter what form it may come in is the ongoing score.

[Wynton]

Aannc44, I understand your plight and I don't mean to say that this condition is such a simple one. But it does seem to be true that some people do just happen to get better, for whatever reason...