I recently met someone on a forum who's also Belgian and who also consulted the most famous CFS healer (hum hum) and ended up WORSE. Indeed, after a year and a half on heavy medcication like antibiotics etc, she got even worse, he tried everything on her and promised her she would get better but of course she didnt. She got tested for the famous virus and it was negative but he told her the test was not reliable and she was positive to it most probably. When she found out she had a thyroid problem, she also went to see an endocrinologist and she made the mistake (or not depending on your point of view) to tell the CFS doctor that she went to see that endo, he got mad at the things the endo told her and said he would write him a paper about CFS cos he knew nothing about it. LAter, she got a paper at home from the CFS doc saying he wouldn't treat her anymore as she was now treated by this endocrinologist so in a word, he just threw her out like a rubbish, what a jerk!
I saw that doctor, so MANY people with CFS want to see him because he's known world wide, STILL I know not one single person who was cured with his treatments. My mum knew his daughter, who was ill with CFS that's how he actually tried to understand the illness cos originally he's a cardiologist and although she was better for a while, she got so so bad the last time my mum saw her and was sleeping for 17 a day. I also know another woman treated by him and she didnt get any better, she spent her days in bed. And now this woman, who spent an arm and a leg in his tests and treatments, because his tests are run in independant labs and cost so much money, I myself spent over 2000 euros just in tests, after the first treatment, my results were even worse than the first time and that's when I thought I should stop there and run away and Im glad I did, you know what? because antibotics or any other heavy treatment will never cure CFS, because CFS is so complex and needs to be addressed differently through multiple therapies, diet changes, stress reducing techniques, adrenal and thyroid support medications etc etc according to the main problem of each and everyone of us.
Also I think CFS is not a diagnosis, I really believe that we have different pathologies that make us tired and doctors just dont want to see what's wrong, also because it's a lot of money to treat people, they wont run tests for ex because it costs money so we're all depressed to them, it's easier that way. When we do run tests properly and interpret them properly we can see what is wrong exactly, that is why so many people have thyroid issues but doc wont see it because they only check TSH for ex. T4 and T3 cost money for the health insurance. Same with adrenals,, same with intolerances, they never check t, only allergies which have nothing to do with ntolerances.
I'm sad Ken left, this is a shame, we should support each other instead of being nasty. The Gupta programme at least helps some people, unlike allopathy as stated above.
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