I'd like to ask for your opinion about diet in CFS.
Quite a number of health care pros and natural therapists have advised me to stick to a healthy diet that does NOT include sugar and sometimes even wheat.
Include plenty of fluids, green vegetables, whole grains etc some fish, lean meat... You know what I mean!
I was told sugar feeds the bad bugs. This is also advertised on quite a few online resources: Dr. Myhill, Prof. Garth Nicolson.
Now here comes the problem: With my balanced diet I would normally have an amount of sweets a day. Say 60-100g (Equivalent of one Mars bar) (Cake, Chocolate, muffin, ice cream you name it) I don't have refined sugar in drinks though.
If I cut out all refined sugar I notice having less energy after a few days and if I cut out wheat (Pizza, White bread, pasta etc) I go flat as. I can't do my normal routine of 10hrs work a week or even domestic chores. I have kept this up for a week or two on two occasions but had to give up because I am not on disability payments and have to do some work during the week.
I don't crave so much for sweets. I just find my energy levels dropping within a few days. I don't see this as a sugar high which would occur within minutes/hours I think.
Here's my question:
1) What is your experience with cutting out sweets (refined sugar)?
2) What do you think about my explanation that sugar is easily digested and easy energy so as a weak person I don't have to spend as much energy on digestion. (Not saying to have lots of it - Balanced!)
3) Can I expect a turnaround if I hang in without the sugar and wheat after a couple of weeks? Any experiences? (I just can't give up my job for a diet if there's no evidence that it'll at least return me to the same energy level)
Thanks for reading and I am looking forward to your responses
(Male, 37, Melbourne, 8 yrs CFS w sudden infectious onset)
Here's some more thoughts but I wanted to finish the essentials to keep it short:
One of the dilemma might be that if I cut out wheat I obviously have to eat more of the other stuff. This means more vegetable shopping and more cooking equals more hard work equals exhaustion. This is part of this problem. I am told to rest. If I opt for washing, cutting and cooking vegetables plus cleaning up versus eating Pizza then I can't see how I am resting. Unless I have a maid or carer who does all that for me. But I don't. I like to do some healthy cooking and some Pizza takeaway. What do you reckon?
I'd love to know what they feed patients with weak immune systems in hospitals. If I have serious pneumonia will I be fed wholemeal rye sandwiches with greens and sprouts or white toast with honey and apple sauce?
Another point is that my health care providers and those online resources mentionned above don't address this issue. My Naturopath says I am on a sugar high. I disagree. One permanent sugar high!
You can even buy refined sugar tablets for physical performance. Goes straight to your blood. (DextroEnergen is a German brand) Do you see the contradiction? I am screaming inside that this is not addressed.
I obviously don't mean to suggest that diet alone can fix CFS. But therapists who advise to go on the diet suggest that it is a fundamental building block of their treatment plan. In other words if you don't do the diet why bother with the rest. I'd like to do their treatments but can't do the diet...