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I really do not know where to begin.

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I really do not know where to begin.

Postby desperateone » Thu Jul 30, 2009 10:16 pm

So my story goes like this.

I was a normal happy child when i was young, i was full of energy, was able to focus, had some a few close friends, shy but no major anxiety really.
Over the course of my lifetime (im 19 now) my health was on a downward spiral. It seems to have started diminishing when i had a major bone fracture (femur) in the 8th grade.

At the time, I also remember hitting my head and it felt like i was floating on air. (aside from the worst leg pain ive had in my life). Anyway as time went on i began walking again, but noticed a gradual energy drop. Along with focus and mental clarity. My grades suffered and all i could do was beat myself up for not trying hard enough. My parents were also hard on me in that they thought i simply did not care about school.

By 17 years old, self esteem was a huge issue. I went from having lots of self esteem to having none at all. I was so angry at myself and i did not understand why i could not do schoolwork, classwork, chores, etc. Who wants to be with a guy who doesn't have the energy to get dressed, or to eat?

Now im 19, and very desperate for help. These past 2 years ive been to asthma doctors, psychiatrists, counseling, pastoral counseling, etc.
im not sure what i have, i thought for sure it was ADD, due to a possible brain injury. After doing cognitive testing they said its probably depression.
So i try some depression meds, only to have my fatigue increased.

Im fairly new to CFS, so i do not know about treatments.

If they are expensive, then i might as well give up now.
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Re: I really do not know where to begin.

Postby efly » Fri Jul 31, 2009 5:45 pm

Hi ...I do not know where to begin.
Please look at the Amygdala retraining forum......a lot of people are getting a lot of help from this.
All the best
efly
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Re: I really do not know where to begin.

Postby desperateone » Fri Jul 31, 2009 7:02 pm

Thanks so much for the reply, oh by the way my name is kyle. I will look into it
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Re: I really do not know where to begin.

Postby kenvj » Sat Aug 01, 2009 3:42 pm

In case you don't know the Amygdala retraining program is the "Gupta Program" - read it and then do it.
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Re: I really do not know where to begin.

Postby dukey » Tue Aug 04, 2009 3:46 am

Hi,
I am by no means an expert, but from your description it could be this

http://en.wikipedia.org/wiki/Avascular_necrosis

That was what was basically causing my CFS, but in my jaw. Part of my bone marrow died, then the necrosis just started to slowly spread. I had an ultra sound on my jaw which detected the problem, then I had surgery to fix it. There must be something similar they can do on your leg to check the bone is healthy. X-ray can indeed miss problems. For me x-ray missed a massive cavitation I had in my jaw.

I had another thought.
Did they pin your leg back together with metal ? Is this metal still in your leg ? It's possible if they did, that the metal in your body could be causing your CFS. If you do still have metal in your leg, you need to find out exactly what it is, and get metal allergy tested for it. See http://www.melisa.org/

Basically in layman's terms what happen is. When you put metal into the mouth (amalgams) or in the body the metal ions escape and can bind to your bodies own proteins. In some people which are sensitive to certain metals, the body then recognises these cells with metal ions bound to them as foreign and attacks them, causing an auto immune response. This is really a nightmare scenario to happen. In CFS patients, the body thinks its constantly attack by a virus and people feel extremely fatigued. I wouldn't recommend getting any metal pins removed, unless you were 100% sure that the metal could be causing you a problem. That is why a metal allergy test is so important. Good luck.
dukey
 

Re: I really do not know where to begin.

Postby Jj85 » Thu Aug 13, 2009 5:02 pm

It may also be worth getting your brain checked out (in whatever way that's possible). I remember when I first started reading about CFS, one of the causes listed was head trauma... I guess your pituitary gland, which controls some hormones, if not functioning correctly, can make you feel a lot of the symptoms of chronic fatigue. Just an idea.
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Re: I really do not know where to begin.

Postby static » Sat Aug 22, 2009 11:50 pm

I think it's important for you to talk to a therapist about how you feel emotionally. If the ones you have seen so far have not been helpful, keep looking until you find someone you are comfortable with and who you feel understands you.They won't be able to treat the fatigue, but it's crucial that you feel as well as possible emotionally, and that you learn not to beat yourself up about not being able to do as much as you wish you could. A large part of the battle with chronic fatigue is learning how to cope with it without becoming overwhelmed or demoralized.

Finding actual treatments for the fatigue may be difficult. Concentrate on coping and on living your life as well as possible and with peace of mind.

And keep investigating if the head injury could be a factor by going to see however many doctors you need to see.

Best wishes to you.
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