Chronic Fatigue Syndrome and Fibromyalgia

kissaragi

Has anyone tried this? Or think its worth trying? I was thinking of giving the over the internet supplement version a go.

[url]http://www.chronicfatiguesyndromesupport.com/library/showarticle.cfm/id/8071[/url]

mike4u · Posted: Sun Jan 27, 2008 6:40 pm Post subject:

i havent tried it, but that is definately something that i would consider. Since that is what dr pall took and recovered himself. Ive take co-q 10 and it seemed to help. I want to try again and take all of them at the same time.
Co-Q10 is kind of expensive, im not sure about the other ones though

lenore · Posted: Mon Jan 28, 2008 11:43 am Post subject:

i had my anti-oxidant levels tested and they were low. I take vitcmin c and NAC, but maybe i should try the other vitamins that are on the protocol

kissaragi · Posted: Mon Jan 28, 2008 3:35 pm Post subject:

I take about 1.5g of vitamin c a day but no other antioxidants.

Im coming off prozac slowly at the moment as well as slowly bringing down the stuff im taking from my private doctor. So think ill give this ago once im settled again.

kenvj · Posted: Wed Jan 30, 2008 7:07 pm Post subject:

Kisseragi - 1.5g Vitamin C is not enough. Take L-Ascorbic Acid to bowel tolerance.
See this http://www.mall-net.com/cathcart/cfids.html
I was virtually house bound for over 4 years - I'm now getting about a bit and can do odd jobs around the back yard - amazing.
Wish you well.

kissaragi · Posted: Tue Feb 19, 2008 7:37 am Post subject:

Just ordered the stuff to start this protocol, minus the extremely expensive Fibroboost as it seems to mostly be for pain and discomfort which i dont really get.

mike4u · Posted: Tue Feb 19, 2008 11:23 pm Post subject:

What is the protocol? Is it just high doses of vitamin c?
I tried i.v vitamin c before, it did help a little. It was expensive though, so i could do it as often as i wanted too.

kissaragi · Posted: Wed Feb 20, 2008 6:13 am Post subject:

Currently its: CoQ10 with some other ingredients, Flavinox, MVM-A, NAC anti oxidant formula, Hight EPA fish oil, Fibroboost and about 8g of buffered vitamin c a day.

Has cost me £90 for just under 2 months supply as long as you buy the majority of it from the US, would be more like £200 if you got them in the UK.

[url]http://www.allergyresearchgroup.com/Explaining-by-Martin-Pall-PhD-sp-35.html[/url]

[url]http://www.chronicfatiguesyndromesupport.com/library/showarticle.cfm/id/8071[/url]

[url]http://www.immunesupport.com/library/showarticle.cfm?id=8075&T=CFIDS_FM[/url]

Hes recently updated his supplement protocol, i have it on paper from my doctor but i cant find it online, the changes from the above are:

MVM-A is now 1 capsule 4 times daily, 3 of those with meals.
Favinox is now 1 capsule 4 times daily.
NAC is now 2 capsules a day, one with breakfast one with supper.
and hes added:
Fibroboost, 2 capsules a day.
Buffered Vitamin C, 4 capsules a day, 3 of them with meals. The vitamin c brand he talks about is 2000mg per capsule.

mike4u · Posted: Thu Feb 21, 2008 5:29 pm Post subject:

thanks for responding.
I might want to try it. If it worked for dr. pall, it might work for me.
That seems like a more resonable thing that might work, unlike some things like the gupta program. I already take a few anti oxidants, not coq10, or flavinox though.

kissaragi · Posted: Mon Mar 03, 2008 10:53 am Post subject:

Anyone else ever had a reaction to acetyl l carnitine? Ive had these weird nervous, hyped up periods shortly after taking the second MVM-A capsule (multi vit and min with 50mg l carnitine). It feels like my heart rate goes up about 50% and i feel a bit hot as well(i guess thats due to the increased heart rate)

when i took acetyl l carnitine on the dr myhill protocol as a powder (2g a day) i thought it made me feel really washed out and tired so i stopped it.

CFS symtoms can be so weird its hard to know whats caused by what but i wondered if anyone else had had anything similar?

vegasv · Posted: Mon Mar 03, 2008 5:51 pm Post subject:

I definatley get weird reactions to certain vitamins and drugs. I try to stick it out for a while, sometimes my body gets used to it goes away. But i get overstimulated by supplements alot.

I just go by how my body feels, and if i cant tolerate it i stop taking it.

If i take alot of antioxidants, sometimes i get overstimulated. Maybe its because our bodies are used to functioning on less energy and then they get a big boost of it all at once.

Good luck with it though, let us know how it goes with the protocol. I might give it a try. Laughing

kissaragi · Posted: Tue Mar 04, 2008 10:51 am Post subject:

I guess if i hope supplements can seriously benefit my health i shouldn't be surprised if one has a big effect like that, maybe its a good sign.

Im off the mvm-a at the moment, ill wait till my body settles down for a few days then try introducing one of the other capsules, i have a biocare multi vit and mineral that i can use to partially replace the mvm-a anyway

kissaragi · Posted: Sun Mar 16, 2008 4:40 pm Post subject:

Learnt a good lesson about not doing two things at once!

Ive been tapering down my prozac for the last two months and the symptoms i thought were from the supplements look like they were from prozac withdrawal symptoms. Have had palpitations, chills, weakness and a bit of shaking.

So when im either off the prozac or back on it ill have another go at the supplements.

Chronic Fatigue Syndrome and Fibromyalgia

Dr Palls Nitric Oxide Cycle Theory