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New drug Savella

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New drug Savella

Postby BR Madame » Thu Sep 10, 2009 5:24 am

My pain dr just started me out on a new drug for pain - Savella. He gave me a free 2wk titration pack working up from 12.5mg 2/day up to 50mg 2/day. I hear this is a very expense medicine so I'm glad I hoot a free sample. It depressed me so bad I wanted to jump off a bridge, I could not sleep longer than 2 hrs at a time and my night sweats went from 2-3/night to 24 hrs a day. DON'T SPEND THE MONEY WITHOUT A FREE SAMPLE FIRST. Oh I also hear that the drug INS don't want to pay for it either. Finally it didn't work.
BR Madame
 
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Re: New drug Savella

Postby fibrobaby » Thu Sep 24, 2009 5:38 am

Hello, I also tried the trial pack and found that the majority of my side effects occured the first 2 days after I went up in doage. My side effect were chills, insomnia, itching, heart palpitations, becoming more anxious than normal, and fatigue. I have a dr. apt today. I took my last pill yesterday. The fatigue didn't kick in til I went up to 50mg 2x a day. I think my pain and discomfort is worse. I am not getting anything out of this drug. I had seen a neurologist 6 mths ago to be tested for MS, but , for the 6th time, I was told I suffer from Fibromyalgia. The neurologist gave me "neurontin" to try. It was a wonder drug for my pain...wow, I felt great, but I got used to it fast, so they bumped me up to 300mg 3x a day. It took about 1-2 months and I felt like I was mentally breaking down. I wanted to see a phsychiatrist, I was ready to end my life...I didn't want to exist. I didn't want to be awake, talk to anyone, go anywhere... I love my work and I didn't even want to go there anymore...that is when I went to see my reg. Dr. and tell her what was going on. Her first thought was to take me off of this neurontin and start me on the savella. I agreed because I couldn't take the waythat I was feeling anymore. As I went up on the savella mg's, I went down on my neurontin mg's. after the 2nd day of taking 2, 50mgs a day, my pain and discomfort hit hard, I am also down to 100mg of neurontin a day... It was wonderful for pain but not good for my brain.
fibrobaby
 
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Re: New drug Savella

Postby janlynnv » Fri Oct 16, 2009 11:57 am

I also tried the Savella starter pack this past summer. By the time i got to the full dose I was so nauseated and sweating so bad that I stopped taking. I just got another trial pack and started again this past Monday, but am doing it at a vey slow increase. I am taking the 12.5 every other day to start and going to go from there. I am already seeing that it is upsetting my stomach tho. I talked to the pharmacist about it and asked him if he thought taking some Maalox with would help the nausea and he said no. It's not my stomach that is actually upset it is something with the brain recpectors causing the nausea. So anyway taking it very slow now and just hoping and praying it will work. I have read of alot of patients having such great results from it but alos have read how it was intolerable for others. I guess I am just going to have to take it "one day at a time" and see what happens.
janlynnv
 
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