by Jj85 » Tue Sep 29, 2009 8:45 am
Hi Tasha,
I just started. In fairness, I had already recovered a lot from my lowpoint by the time this fall rolled around. I should say, in some ways I feel a little guilty even posting here, as my illness is now at the point where it seems very manageable, in relation to the things you guys are putting up with now (and that I was putting up with months ago). So I don't want my advice to be taken with too much weight-- as it is, I have days now where I really do feel completely healthy. Exercise and other stressful situations still cause problems, so I won't say that I've actually been cured yet, but I'm just in a much better place. But it does sound like your condition is still very difficult, so maybe I shouldn't be commenting. I can relate to the study-then-meditate method. Last night in the library, I was getting pretty jittery with all the work I had, so I had to go to the bathroom, sit in a stall, and do S&F for 10 mins...
All I can vouch for, in regards to this sort of stuff, is the following:
-When I was most worried about my career/school, my symptoms were the worst. Thoughts of deferring school and living with my parents terrified me, and that stress only added to the sort of vicious cycle Ashok talks about. The fact was, I shouldn't have been, and shouldn't be, worried about this stuff. Worrying only makes things worse.
-In that vein, the turning point, for me, came when, instead of feeling like I was "fighting" CFS, I decided instead to try to accept my condition as deeply as possible, without any regrets about what I'd lost, or sadness about what I might not be able to do in the future. It was as if, by luck, I was starting Ashok's program without even knowing.
-It does seem like I'm the rare person with CFS who doesn't have a type A personality-- this was probably very helpful.
Lastly, try to get some clonazepam. That's been the one drug that's really helped with my symptoms (calms me down and even seems to help with brain fog).