bedbound

[neil25]

i don't know if anyone else has had a similar experience to myself. when i first crashed with cfs i was literally sleeping for 20 hours in the day i was completly exhausted. this went on for weeks. i felt like i was in a vicious circle i could not get out of. I would wake up in the morning and basically an hour later i was asleep.

i remember my parents went away on holiday so i went to stay with my brother and this was the turning point. it's like i had some motivation to get up as i liked spending time with my brother. so not matter how hard it was and believe you it was bloody hard there were times when i thought i was going to collapse i got up. within the first day there was improvement i only slept for 3 hours in the afternoon, for those two weeks i recorded all the times i was sleeping through the day and naps i would take. gradually over the weeks it got less each day i was probably doing about 2 to 3 hours of walking and still managed to reduce my sleeping time in the day. when i think about if i hadn't gone to my brothers for those two weeks i might still be bed bound to this day. i really thought i could not get out of that life of being bed bound.

i think motivation and having something to truly live for gives you that drive that can help the bed bound sufferers to get out of the cycle. cos i know how bad it can be i was bed bound i would say for about 3 weeks and it was awful when i think back to those times i wonder how the hell i got through it. there was days when i just wanted to kill myself i remember actually contemplating it. It just felt so completly out of control. i think advice to patients who have been bound for years is that all they really need is motivation and positive thinking this is why i feel the gupta programme helps them.

[CS1]

I have a feeling people have motivational issues ( which is most people with CFS ) because they have many mental BLOCKS holding them back. Unless these are addressed people may make some progress on the techniqiues but may not make a full recovery.



Regards
CS

[Recovery Soon]

According to Gupta and others, the personality profile of most CFS people is driven, rather than unmotivated.

[JR]

When I was bed bound for 9 months with a severe CFS relapse, I was so weak that I couldn't lift my arms to feed myself or walk to the bathroom. I was infuriated at having to put my life on hold, which I was really enjoying. I don't meet a lot of people with CFS who seem unmotivated. I think that what was going on with me was a severely freaked out amygdala. Every time I tried to increase my activity, I would get much, much weaker. So, I'd pull back, and then get even weaker from muscle deconditioning. A nasty, vicious circle. What helped me get better was not finding something to motivate me, since I've always been a very self-directed, motivated person. The solution was learning to tame my amygdala.

[CS1]

[quote="Recovery Soon"]According to Gupta and others, the personality profile of most CFS people is driven, rather than unmotivated.[/quote]




Yep, I have a typical type A personality.

This said, I was having dips in my motivation in my recovery simply because I didnt know why my progress halted...now by varying the Gupta techniques and addressing my deeper issues Im back on track!




Regards
CS

[neil25]

can i ask you how you addressed your deep issues?

[CS1]

[quote="neil25"]can i ask you how you addressed your deep issues?[/quote]



In short, the therapist which is making me think about my core issues.I will be seeing her once a week to keep up the momentum.I aim to work with my therapist to resolve these issues and replacing the issues with a positive slant. Once I know the common themes through our chats i should be able to help myself.

As well as working through my issues with the therapist Ill be doing the AR programme and monitoring my stress levels...and really experiencing ALL aspects of life and what I want out of it..rather than trying visualising it!!!




Regards
CS