Not sure how to cope right now, need advice

[gu3vara]

Hi,

I've been trying to do the Gupta program for about a month now and I'm really struggling to do it...sadly.

I realized how depressed I was when I started doing the stop technique, I would end up crying at the end and feeling more and more anxious each time I was doing it. I'm still following the soften and flow thing religiously though and I've been already meditation for a 2 months now, before gupta. My sleep as been really bad for a couple months with panic attacks in the morning and other unpleasant stuff.

I felt I needed an antidepressant to help me bother less about my life, felt it would be easier to stick to the program. Been on remeron for a couple weeks now, which markedly improved my sleep and depression is less bad now.

HOWEVER! I had a call from insurance company (on long term disability) that I had to do an exercise program with specialist to regain strength, that was the last priority I had really, I was commited to do what gupta said, not start training... I'm feeling like a train wreck since starting the physical rehab and some symptoms like heart pain are much worse, in my mind I KNOW it's not right to do aerobic right now. light anaerobic seems ok though and beneficial.

It makes it really hard to commit to gupta again, worse symptoms = worse thoughts, more often. I'm anxious as hell about what I have to do even if they say go very slow etc... I'm clearly not recovering even 3 days after the session.

Am I wrong thinking exercise is not the best way to start my recovery? I feel a bit trapped now, that was so not my plan early this year...I feel it makes it too difficult to do gupta correctly.

Thx guys

[kenvj]

Exercise is probably the worst way to start Gupta - just do what Ashok asks you to do. Best of luck.

[ldg]

Sorry to hear this. My suggestion is to ring the insurance company and tell them how much worse you feel from doing what they told you to do. My guess is they wouldn't want to know about Gupta but you could try tell them that you are doing it (something rather than nothing).

I felt more anxious when I started the program especially when doing the stops but it calmed down. I think the soften and flow helped me a lot and the meditation. Remember to slow down your breathing or for some of us to breathe. Someone else mentioned to do it "without emotional involvement" and that helped me also.
Good luck

[neil25]

Don't get too worried about the gupta programme. When I first started it I was extremly anxious and very depressed. I think it was because i expected a lot from the gupta programme and was so excited that i had come across some amazin cure. I suppose i've now realised that the gupta programme isnt going to provide me the miracle cure i was looking for as CFS is just far too complex a condition. Now that i have accepted that it makes me less anxious about the techniques and i just do them without thinkin too much about them if that makes sense. hope this helps.

[CS1]

1) Yeah stick to the Prgramme - depending on how long youve been sick it may be enough and may take a year plus to make progress


2) work on Core issues / self development / INTERESTS to really engage the mind which will lower your stress levels - this what Im working on !


Regards
CS

[Emergo]

Hi,

Maybe you're not more anxious, you might be more aware of your anxiety due to Gupta. At least, that was my case when I started. I also found out that, when you 'release' certain fears, other new fears might arise. So it feels like it's not working, but it is.

Fo what it's worth; I've not come across someone who has NOT benefitted from the Gupta program. A therapist I've been seeing a couple of times, recommended it to other patients of hers too (after she heard about it from me), and they all made progress.

If you can get out of the physical test - do so. I don't know how obligatory this test is, but you might convince the insurance company to not do it (yet). Try to convince them (with arguments and info) and not get yourself in a stressed state.
On the other hand: if you really ´fail´ this test, couldn´t that be just the proof the insurance company needs that you indeed can not do what you can not do, and grant you a benefit or more time to recover?

Hang in there!
E

[Sylvia]

It sure sounds like classic Clinical Depression.

That Remeron already has helped with sleep and lowered depression is GREAT news. Keep working with your physician regarding symptoms, and levels of depression.

Gupta can wait. What if you hadn't ordered it until 3 months hence? Take care of the depression and THEN you can really focus on Amygdala Retraining. This is my advice to you.

[gu3vara]

thx all,

I showed this presentation to my physical trainer yesterday :

http://podcast.med.ucalgary.ca/groups/c ... FS_ME.html

It's quite interesting and seems to be the compromise between doing nothing and training, there is no aerobic training in any way. He agreed to work with that.

I'm still in a big pain flare though (feels more like all over itching though) since my first aerobic test. I wish I could have a break before restarting the training, I will raise a flag if I'm feeling poorly monday.

It's odd, I can do the training in the morning (except for the aerobic part) without much problem if I go slowly. But my symptoms become terrible at 3 pm. It's always the same thing.

I will talk about that to my doctor tuesday. Maybe he will force them to give me a week off to see if symptoms settle down a bit

[ldg]

"It's odd, I can do the training in the morning (except for the aerobic part) without much problem if I go slowly. But my symptoms become terrible at 3 pm. It's always the same thing."

Many of us experience this post exercise malaise. Sometimes it's not until the next day, which is why it is always better to do less regardless of how well you may feel.

[Minaret]

You are clearly having a terrible conflict. We all suffer this from time to time, especially anyone here, with prolonged illnesses:

I use this sometimes from Eckhart Tolle (in his book The Power of Now)

"If the mind starts to complain about being in physical pain, you have two levels of pain - you have psychological pain and physical pain. ...Don't create psychological pain on top of the physical pain."

[java]

Just a word of advice. It would be beneficial if you and your doctor had a discussion about how to deal with the legalities regarding insurance companies. The insurance companies are in business to make money and if you are a liability to them, they will try to discredit you and your doctor, and try to force you to do activity detrimental to your health. The purpose of this is to make you resist and thus appear "uncooperative" to their efforts to rehabilitate you. This is strictly to build a legal case against you to get out of paying you long term disability. Make no mistake. Insurance companies have no conscience and will do anything in their power to achieve this. It is Imperative that you communicate to them only through your doctor. Your doctor must be in charge of all medical decisions and do the paperwork properly to protect your interest. If this is a work related disability case, then you can be fairly certain that the insurance company was hired by your employer. That's who they work for - not you.
I don't mean to cause stress. Just make sure your medical person represents you and protects you and you will get through it ok, and ensure that some conglomerate does not call the shots regarding your treatments. Hopefully this is already the case.
Sorry to sound negative. We do have to pay attention to legalities, however, to make it easier to focus on the important issue of getting better. I wish you all the best and hope everything goes amazingly well for you.

[CS1]

Stick to Gupta - it will ultimately make you calmer and then you can get to your core issues and then dig even deeper into your belief system.

I woulld not recommend any exercise programme until your well PACE yourself.

You WILL get better- you need to challenge your beliefs about CFS - I had deep rooted anxiety and its going!!



Regards
CS

[efly]

http://aboutmecfs.org/Rsrcs/DisabilityIntro.aspx
You may find this article helpful. Search the net for articles showing the Negative effect excercise has on us.
Take these to your Dr ...........Get him on your side to help with the insurance companies.
cheers Efly