Will program help while taking Valcyte?

[m1she11e]

First I would like to say that I just recieved the program and am really looking forward to putting it into practice. So far I am VERY impressed!

I am scheduled to start Valcyte for an extremely high HHV6 count in a couple of weeks. I assume that Ashov knows what I am talking about in regards to the HHV6 virus and Valcyte treatment. I know it is VERY toxic and I had tried to take it about 2 months ago and got sick beyond explanation. (Supposed to be a good sign as it is killing off the virus) I finally decided to take 6 months off from work and give it a go again. I know by my own experience, and that of others, that I am going to get very sick from this medication. At this point I am already so sick, and my virus counts are so high, and I have alrleady tried all of the diet and alternative medicine things, I have just decided to give the Valcyte a try despite how sick I get while on it.

My question is whether the Amygdala retraining will be able to start to take hold while on the drug? Will putting something toxic in my body that will make my body feel bad for awhile negate any benefit from the program? I know there are alot of people here in the United States trying Valcyte and emotionally it is a very difficult 6 months. I personally think the program will be an emotional god send, but will I actually be able to retrain the Amygdala at the same time? There is a lady on one of the other boards who took the Valcyte and didnt think it helped but she did the Amygdala training after and felt it was a huge success. I would like to do them both together, and continue with the retraining once I have stopped the drug.

Any thoughts??

[Recovery Soon]

I think you should do one or the other, or else you will not know what works.

My suggestion is to hold off on the Valcyte for 6 months, and see what results you get from GAR.

If the program works for you then you might not need the Valcyte. If it doesn't you can start it then.

Especially, if you know that you are going to have a terrible reaction to the drug, it might be unnecessary to put yourself through that.

I think the important thing is to not keep questioning what is working and what isn't. That will just drive you crazy.

Whatever you choose, please update us periodically, and let us know how you are doing. I know you were skeptical about the program. Your feedback will be invaluable, and I very much look forward to hearing from you. Good luck!

And again, kudos to Ashok for his generosity in sending you the program for free.

[m1she11e]

I appreciate your response. Problem here is I can only stay out of work for so long. You are right, not making a decision is the thing that is the hardest on you. Unfortunenately, I will have to return to work in about 8 months. I took the time off and borrowed the money to take the Valcyte. It does scare me very much but not doing it and throwing this time away scares me more. That is why I was hoping to do both. Yes, it would be hard to tell what was working, but at this point I feel there is no turning back on the Valcyte.

Yes, it was very generous of Ashov to send me the program for free. To be honest, I didnt mention it again because I didnt want anyone getting the idea that if they express skeptisism, they will get the program for free. But now that you brought it up again, it was not only generous, it gave me confidence in his sincere belief in the program. Either that or he wanted to shut me up!! My daughter thinks I am a total loser for being on these boards in the last few months, but when I told her what happened with Ashov sending me the program she wanted me to post some negative stuff on the "BMW message board." (She was joking! Dont want to stir the pot again!!)

I plan to do the program either way. I also am fairly certain already I will be keeping the program and sending Ashov a check as soon as I have the money.

[efly]

Hi Mishelle'
Just a few thoughts... The Amygdala can ''REACT '' to drugs....it also senses these as a threat and consequently stimulates the sympathetic nervous system. I agree with recovery soon.... do one or the other not both.
efly

[Chronicfatiguetreatments]

im curious to see the results of either one. I think you would have to separate them so you'll know what is helping you, but if you have time constraints then you have to do what you need to do.

How did you get the valcyte?
did you have to convince a dr. to give it to you, or did you go to someone that has used valcyte before?

[neil_l]

Good luck witht he program m1she11e

[damask-rose]

I don't know if this will be helpful or not! I'll go ahead anway. On another CFS board I was on, lots of the members started to take these heavy antiviral and antibiotic drugs, because one person had been cured by them. They were convinced it would help, but they suffered intense misery due to the side-effects, and I haven't seen yet that any of them are cured. I kept following the thread, and got worried that maybe this was the [i]real[/i] way to recover from ME and that if I was ridden with viruses and worms etc, then the Amygdala Retraining wouldn't work. But I couldn't bear the thought of putting myself through all that.

Anyway, I'm really glad I just stuck with the AR. I'm almost completely better now, and can see for sure that a little more retraining will finish off the whole business. Personally, I would do the AR first. If you really knuckle down to it, 8 months should be plenty of time to break the back of it. As elfly said, it would be very difficult to do the AR while you're suffering side-effects from heavy drugs. The ordinary symptoms of CFS are bad enough! But that's just my tuppeny worth!

[m1she11e]

Thanks all for your responses!!

I knew that the constant assault on the Amygdala caused by a drug would be a problem. I was just hoping that maybe the doing both would help me deal with the effects of the drug, get me practiced in the training, and when I stop using the drug, it would help me fully recover. Believe me, I am not looking forward to the drug at all.

Some one asked how I got the prescription. I went to a local doctor who had helped a woman I met get over CFS. She suffered from Mycoplasmas and went on an antibiotic protocol. She is vibrantly healthy now. I went to be tested for the Mycoplasmas and when we talked he decided I should test for HHV6, EBV, and CMV. I tested positive for EBV and HHV6 and slightly for Mycoplasmas. The HHV6 was 65 times higher than normal, which is a very high result. My doctor has been prescribing Valcyte for 4 years and never has seen any negative side effects. He doesnt boast a huge cure rate either, but he does see people get "better than they can ever remember." (He is a humble man and barely makes a living. He is not one of those docs making a killing off CFS) I have read the boards to. That is what brought me to these boards in the last few months. I was looking to see others experience with Valcyte. Mostly not good, but the ones that dont get better usually will say they know people they met at their doctors office that did. I had a plastic surgeon post back to me that it took 6 months from stopping the drug to se results but works full time as a surgeon again, and works out 4 days a week. WOW! My doctor thinks I am a prime candidate because I have such obvious viral symptoms. (sore throats, constant low grade fever, etc. My illness came on with a flu that wouldnt run its course.) Also, the getting really sick right away is usually a sign that you will get better. On the flip side, there is about 5 percent out there that say they got worse and never returned to their pre-Valcyte state. Lately I have been suffering so much though, now with Vertigo, extreme weakness, and havent had a good day in about 5 months. I guess it has pushed me to being willing to run the risk. A year ago I would have popped some more supplements, and done the meditatiion and breathing that helped me through tough times in the past. This time it is pretty bad though.

If I had longer to be out of work I would absolutely do the Gupta program first, with a healthy diet, and immune support. That sounds so much nicer than the drug. I just dont have the time to do both. You cannot work while doing Valcyte.

Im viewing the DVD's and doing the lessons as directed for now. Im not on Valcyte yet.

Again, thank you for your replies and for the good luck!!

[dmbaken]

Hi M1scelle

Its good to hear that you are going to try the programme. It is a hard choice you have at the moment. My family has found quite big changes in the first few days/weeks. Hopefully you do too. I suspect, along with the others that the side effects / die off of the valcyte will work against the Amygdala program but creating more physical sensations for the amygdala to worry about.

Anyway. I hope that it goes great for you!

Regards

Don

[deereulogia]

Hi All,

I am new to this whole blogging on the internet. I would like to say I am so glad to have found this site. I was diagnosed with chronic fatigue/fibro, which started back in 2002 when I had a severe case of mono. I started taking valcyte about 7 weeks ago, along with many supplements, and have had vitamin C IVs everyweek. I'm really hoping that this will work since it's my last resort. I'm living in NYC with my boyfriend and have had many struggles and stressful situations which worsened my CFID. It is very frustrating to have to deal with my boyfriend's parents, my parents, and my boyfriend all pointing the finger at me claiming that I'm lazy because I never have the energy to do anything and I can't work. There are days I can't even get out of bed and it's so emotionally draining just dealing with the illness, let alone the ignorance from people that have no idea what I'm going thru. Well I don't want to digress - I am going to be on the valcyte for 6 months, along with the supplements. My insurance won't cover anymore vitamin C treatments, because I have hit the maximum of 10 or so IVs. My Dr. is going to write a letter to try to get them to allow me to get more IVs. I will definately let everyone know how it works. Also, I was reading about the Gupta Program which I am interested in trying. However, I am going to wait until I am done with the valcyte treatment. Anyone have any experience with the Valcyte treatment and or the Gupta Program???

Thanks!
J

[deereulogia]

Hi All,

I am new to this whole blogging on the internet. I would like to say I am so glad to have found this site. I was diagnosed with chronic fatigue/fibro, which started back in 2002 when I had a severe case of mono. I started taking valcyte about 7 weeks ago, along with many supplements, and have had vitamin C IVs everyweek. I'm really hoping that this will work since it's my last resort. I'm living in NYC with my boyfriend and have had many struggles and stressful situations which worsened my CFID. It is very frustrating to have to deal with my boyfriend's parents, my parents, and my boyfriend all pointing the finger at me claiming that I'm lazy because I never have the energy to do anything and I can't work. There are days I can't even get out of bed and it's so emotionally draining just dealing with the illness, let alone the ignorance from people that have no idea what I'm going thru. Well I don't want to digress - I am going to be on the valcyte for 6 months, along with the supplements. My insurance won't cover anymore vitamin C treatments, because I have hit the maximum of 10 or so IVs. My Dr. is going to write a letter to try to get them to allow me to get more IVs. I will definately let everyone know how it works. Also, I was reading about the Gupta Program which I am interested in trying. However, I am going to wait until I am done with the valcyte treatment. Anyone have any experience with the Valcyte treatment and or the Gupta Program???

Thanks!
J

[deereulogia]

Hi All,

I am new to this whole blogging on the internet. I would like to say I am so glad to have found this site. I was diagnosed with chronic fatigue/fibro, which started back in 2002 when I had a severe case of mono. I started taking valcyte about 7 weeks ago, along with many supplements, and have had vitamin C IVs everyweek. I'm really hoping that this will work since it's my last resort. I'm living in NYC with my boyfriend and have had many struggles and stressful situations which worsened my CFID. It is very frustrating to have to deal with my boyfriend's parents, my parents, and my boyfriend all pointing the finger at me claiming that I'm lazy because I never have the energy to do anything and I can't work. There are days I can't even get out of bed and it's so emotionally draining just dealing with the illness, let alone the ignorance from people that have no idea what I'm going thru. Well I don't want to digress - I am going to be on the valcyte for 6 months, along with the supplements. My insurance won't cover anymore vitamin C treatments, because I have hit the maximum of 10 or so IVs. My Dr. is going to write a letter to try to get them to allow me to get more IVs. I will definately let everyone know how it works. Also, I was reading about the Gupta Program which I am interested in trying. However, I am going to wait until I am done with the valcyte treatment. Anyone have any experience with the Valcyte treatment and or the Gupta Program???

Thanks!
J

[deereulogia]

Hi All,

I am new to this whole blogging on the internet. I would like to say I am so glad to have found this site. I was diagnosed with chronic fatigue/fibro, which started back in 2002 when I had a severe case of mono. I started taking valcyte about 7 weeks ago, along with many supplements, and have had vitamin C IVs everyweek. I'm really hoping that this will work since it's my last resort. I'm living in NYC with my boyfriend and have had many struggles and stressful situations which worsened my CFID. It is very frustrating to have to deal with my boyfriend's parents, my parents, and my boyfriend all pointing the finger at me claiming that I'm lazy because I never have the energy to do anything and I can't work. There are days I can't even get out of bed and it's so emotionally draining just dealing with the illness, let alone the ignorance from people that have no idea what I'm going thru. Well I don't want to digress - I am going to be on the valcyte for 6 months, along with the supplements. My insurance won't cover anymore vitamin C treatments, because I have hit the maximum of 10 or so IVs. My Dr. is going to write a letter to try to get them to allow me to get more IVs. I will definately let everyone know how it works. Also, I was reading about the Gupta Program which I am interested in trying. However, I am going to wait until I am done with the valcyte treatment. Anyone have any experience with the Valcyte treatment and or the Gupta Program???

Thanks!
J

[deereulogia]

Hi All,

I am new to this whole blogging on the internet. I would like to say I am so glad to have found this site. I was diagnosed with chronic fatigue/fibro, which started back in 2002 when I had a severe case of mono. I started taking valcyte about 7 weeks ago, along with many supplements, and have had vitamin C IVs everyweek. I'm really hoping that this will work since it's my last resort. I'm living in NYC with my boyfriend and have had many struggles and stressful situations which worsened my CFID. It is very frustrating to have to deal with my boyfriend's parents, my parents, and my boyfriend all pointing the finger at me claiming that I'm lazy because I never have the energy to do anything and I can't work. There are days I can't even get out of bed and it's so emotionally draining just dealing with the illness, let alone the ignorance from people that have no idea what I'm going thru. Well I don't want to digress - I am going to be on the valcyte for 6 months, along with the supplements. My insurance won't cover anymore vitamin C treatments, because I have hit the maximum of 10 or so IVs. My Dr. is going to write a letter to try to get them to allow me to get more IVs. I will definately let everyone know how it works. Also, I was reading about the Gupta Program which I am interested in trying. However, I am going to wait until I am done with the valcyte treatment. Anyone have any experience with the Valcyte treatment and or the Gupta Program???

Thanks!
J

[Ashok Gupta]

Hi Everyone

This is the rule of thumb with the Gupta Programme. If you are on another treatment and that treatment is NOT making you any worse, then it is ok to do the Gupta programme at the same time.

However if a drug will make you worse, then I would advise NOT to do the Gupta Programme. Why? Because then you are getting symptoms which are not only due to amygdala overload, but also due to the physical effects of the drug. So you won't know which symptoms are being caused by which. So Michelle, I would advise doing one or the other but not both. If you can why not do the amygdala retraining first, and then see whether you need the anti-virals afterwards?

Ashok