effy and JR, thank you so very much, it's so nice to hear from people who are going through what I am. I have had no contact with any other people with CFS the whole time, ... I think because I'm determined to think like a healthy person, BE healthy, and joining a support group I thought wouldn't do anything to get me better ...
but just being on this forum, I have to say, what a RELIEF to finally talk to some people who really understand how awful CFS actually it, how it rips your life away. People who don't have it can be very kind, but they of course can never really get it until they live in your skin for a day. So thank you so much for taking the time to reply to me and for the support.
Effy that is great encouragement! I really thought that people might tell me to give up. But you have encouraged me, I will keep going with it. I originally intended to stick to it for 6 months, then get a refund if it hasn't worked (I couldn't really afford it in the first place

). So I will do it and stay happy. I enjoy doing it anyway, & I'm into NLP and meditation in any case.
Effy sorry you get vomiting - it's horrible, I had a lot of that at the start, an awful lot (first thing in the morning, great volumes of it ... urgh). I don't often hear people mentioning that, I hope you feel better soon because I know how rubbish that can be.
JR thank you for the welcome & encouragement! I would get to the point where I was getting a bit better, then just have a social event that was physically demanding, then bam, relapse badly for 6 weeks. That is brilliant you are getting better, & on the road to full recovery.
But JR like you say, I will just let it go and do it, and not be concerned whether it is working or not. I very much like the aspect of not thinking of symptoms - I was already doing this for at least 6 months before starting ... I had got to the point where illness bored me so much! I have so much pain, I just naturally decided - if I die, I die ... whatever happens, I'd prefer to be thinking about happier things! I'm lucky I don't get brain fog /brain tiredness any more, so I distract myself either with meditation or intellectual projects when I can.
I am lucky in that I haven't got depressed by the CFS, but I totally understand people who do. I have got angry as hell though, and sad, and emotional ... but it comes and goes, blows away like a storm, and I let less of those emotions now. Somehow CFS has shown me more of who I really am, and made me stronger. It's made me pity and want to help people who are sick when I can, that silent class of society we never see on TV or on the street, who are silently suffering and worrying and desperate, every day. I think when you well and working and busy and happy, its easy to just not realise how many people are in trouble.
thank you for listening ... what a relief to finally be able to talk!
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