by i_remember_me » Fri Aug 28, 2009 11:58 am
I totally empathise with your fear and anguish, but take comfort in knowing that the beginning is the very worst of it for the vast majority of people. It's extremely rare that people continue to get worse or stay unwell indefinitely. Recovery is the NORM - remember that! When I was first told by my doctor that there was nothing they could do to help and I had some mysterious, life-changing and stigmatised illness I walked out of the surgery in a complete daze, then spent the next few weeks absolutely distraught and miserable. I pictured an impossibly bleak future. But I adapted and survived - that's what humans do, it's in our genes! I made it through, and so will you. You go into survival mode, but this is actually a double-edged sword. If you subscribe to Ashok's theory (which I 100% do), then your body switches into a state of constant fight or flight which actually perpetuates the symptoms. You can spend too long thinking thinking thinking about "being ill". So the best things you can do are...
1. Relax relax relax. RELAX!
2. Realise that the fear of having no light at the end of the tunnel is very common for newly diagnosed people, but it will soon pass.
3. Find someone supportive to confide in and to have a laugh with.
4. Don't needlessly depress yourself by dwelling on the worst possible outcomes. Think how many times you've feared the worst in the past and it never happened.
I hope that helps and doesn't seem too patronising. As people who've been through the same, trust me when I say we're all rooting for you!