Chronic Fatigue Syndrome and Fibromyalgia

boxermom · Posted: Thu Nov 06, 2008 2:26 pm Post subject: Newbey

Hi Flooz;

I have had CFIDS, Fibro and all sort of fun things for a few years now. I am still fighting for disability, but I have learned that never giving up is key to this disease.

I was diagnosed, after years of several doctors telling me there was nothing wrong with me, with Chronic EbsteinBarr on july 12 of 2006. I have read all sorts of books, and joined lots of chat rooms, but the best I have to say is the CFIDS Association of America, They have a web site, and a wonderful lady by the name of Nova Bouknight will get you started. They are there to help, and they will stand behind you,

It is pretty scary stuff, and you have too make the decision of weather you are going to fight it every day, or lock yourself away from the world. My cousin Jakc has it also, and he hasn't been out of his home in 4 years. I won't do that. I have decided that I will get out of bed every day, and try to do something. I try to do a water work out program that my Physical therapist gave me at least 3 times a week(it is amazing how much it helps). I also have an Amazing doctor who believes that together we can stay on top of this.

I am currently fighting a round with bronchitus, and an upper respritory infection, but if I rest right, eat right, and do what the doc says I'll get over it. Truth is I got lax in caring for my self and that is how I got it in the first place. Don't get enough sleep, push yourself to hard, and allow your self to be around other sick people and you'll be sick. ( I can be pretty hard headed)

You can win as long as you take care of your self. Make sure you get sleep, take you meds on time, and find a doctor that will fight with you. Dr. Williams tells me all the time that he is amazed at how much I can do , and how well I do with it. Know your limits, don't push to hard, Pray, and I will pray for you, and you'll be surprised.

Don't give up honey. Fight like you have never fought before. If your doctor doesn't seem to understand then find one that does. The CFIDS Association can help you there.

Hang in there and know you are in my prayers,
BoxerMom

boxermom · Posted: Thu Nov 06, 2008 2:27 pm Post subject: Newbey

Hi Flooz;

I have had CFIDS, Fibro and all sort of fun things for a few years now. I am still fighting for disability, but I have learned that never giving up is key to this disease.

I was diagnosed, after years of several doctors telling me there was nothing wrong with me, with Chronic EbsteinBarr on july 12 of 2006. I have read all sorts of books, and joined lots of chat rooms, but the best I have to say is the CFIDS Association of America, They have a web site, and a wonderful lady by the name of Nova Bouknight will get you started. They are there to help, and they will stand behind you,

It is pretty scary stuff, and you have too make the decision of weather you are going to fight it every day, or lock yourself away from the world. My cousin Jakc has it also, and he hasn't been out of his home in 4 years. I won't do that. I have decided that I will get out of bed every day, and try to do something. I try to do a water work out program that my Physical therapist gave me at least 3 times a week(it is amazing how much it helps). I also have an Amazing doctor who believes that together we can stay on top of this.

I am currently fighting a round with bronchitus, and an upper respritory infection, but if I rest right, eat right, and do what the doc says I'll get over it. Truth is I got lax in caring for my self and that is how I got it in the first place. Don't get enough sleep, push yourself to hard, and allow your self to be around other sick people and you'll be sick. ( I can be pretty hard headed)

You can win as long as you take care of your self. Make sure you get sleep, take you meds on time, and find a doctor that will fight with you. Dr. Williams tells me all the time that he is amazed at how much I can do , and how well I do with it. Know your limits, don't push to hard, Pray, and I will pray for you, and you'll be surprised.

Don't give up honey. Fight like you have never fought before. If your doctor doesn't seem to understand then find one that does. The CFIDS Association can help you there.

Hang in there and know you are in my prayers,
BoxerMom

boxermom · Posted: Thu Nov 06, 2008 2:28 pm Post subject: Hello Flooz

Hi Flooz;

I have had CFIDS, Fibro and all sort of fun things for a few years now. I am still fighting for disability, but I have learned that never giving up is key to this disease.

I was diagnosed, after years of several doctors telling me there was nothing wrong with me, with Chronic EbsteinBarr on july 12 of 2006. I have read all sorts of books, and joined lots of chat rooms, but the best I have to say is the CFIDS Association of America, They have a web site, and a wonderful lady by the name of Nova Bouknight will get you started. They are there to help, and they will stand behind you,

It is pretty scary stuff, and you have too make the decision of weather you are going to fight it every day, or lock yourself away from the world. My cousin Jakc has it also, and he hasn't been out of his home in 4 years. I won't do that. I have decided that I will get out of bed every day, and try to do something. I try to do a water work out program that my Physical therapist gave me at least 3 times a week(it is amazing how much it helps). I also have an Amazing doctor who believes that together we can stay on top of this.

I am currently fighting a round with bronchitus, and an upper respritory infection, but if I rest right, eat right, and do what the doc says I'll get over it. Truth is I got lax in caring for my self and that is how I got it in the first place. Don't get enough sleep, push yourself to hard, and allow your self to be around other sick people and you'll be sick. ( I can be pretty hard headed)

You can win as long as you take care of your self. Make sure you get sleep, take you meds on time, and find a doctor that will fight with you. Dr. Williams tells me all the time that he is amazed at how much I can do , and how well I do with it. Know your limits, don't push to hard, Pray, and I will pray for you, and you'll be surprised.

Don't give up honey. Fight like you have never fought before. If your doctor doesn't seem to understand then find one that does. The CFIDS Association can help you there.

Hang in there and know you are in my prayers,
BoxerMom

smartcookie38 · Posted: Fri Nov 28, 2008 3:15 pm Post subject: Hi everybody

Guys,you are a great bunch! You really are!Even though I feel like c.! ^* and I don't have the energy to do anything,I still feel better reading your comments.
One quick question:have any of you tried dr Jacob's Tietelbaum program ( endfatigue. com ) or Viviane Oberhand (www.fibroalive.com )?

denij · Posted: Thu Jan 01, 2009 7:44 pm Post subject:

The Center For Disease Control website is interesting. One thing they say is that early diagnosis and treatment is important to recovery of any sort, and I've found that being in a position of being able to take some time off work (unemployment for a year ) and trying to focus on getting well has resulted in an improvement in my symptoms. They say it can take from 1 to 5 years to really come out of it.
For me severe stress and not taking care of myself resulted in exhausted adrenals that were struggling. Had my hormones checked and found my DHEA was low. Tried it for a while and found a significant improvement in my sleep, and clearer thinking as well as more energy. Unfortunately DHEA is converted to different hormones by different people and I was making too much testoterone. Also it isn't advised for long term. I took it for 3 months. I read in a couple of places that DHEA can possibly jump start adrenals. I do feel it helped. But just trying to get healthy and taking good care are sound practices no matter what our situation. Too bad it's so tricky getting a helpful doctor.

Chronic Fatigue Syndrome and Fibromyalgia

Hello, i'm new - and i'm desperate.............