Last 10 active topics

Hi all. I thought I was already registered on this board but apparently not! Just wanted to share in case anyone out there has any ideas.

I've been in hospital for 7+ weeks since late nov to 19th Jan. I've had CFS/ME/MCS/FM for 11 years that started with severe digestive problems in late 2000. My whole story is at cfsjourney.org if interested.

Basically have had adrenal insufficiency since late 2008 which has required hydrocortisone ever ...

Hi Everyone,

I'm really worried and looking for some help. I have NOT been diagnosed with CF, but have a strong suspicion that I have it. I had a baby almost 2 years ago and soon started developing a bunch of awful symptoms which led to the diagnosis of Post Partum Thyroiditis and Hashimoto's. Over the course of the next year and a half I worked very hard to get my thyroid back in good ...

I went to the doctor for the first time since I was a teenager (I'm 40). For years, the FM was mostly speculation backed up by having nearly every symptom on the list. However, I recently went to the doctor (finally) and was diagnosed with FM - well, the dr. didn't say "you have fibromyalgia," but she put me on Cymbalta, 30mg for treatment, so I'm assuming she was in agreement that I have FM. ...

Hello,

I'm new to this site - please be gentle! :)

I'd really like to connect with other UK CFS sufferers & swap stories - is this the best place to do so?

I have sarcoid an I am suffering from a prolonged period of extreme fatigue accompanied by muscular aches and pains. I had some blood tests done and it showed up very little, just two levels are near or beyond normal ranges quoted by the lab:
- my bilirubin level at was a shade above the normal range
- my erythrocyte sedimentation rate (ESR) was 1mm/h, at the very bottom of the lab reference range of ...

In-depth TV interview of Simran Gill....fibromyalgia sufferer and Miss Asian Model 2011:

www.youtube.com/watch?v=trR2kRb2QrQ

I'm still getting eye pain and blurry vision. Doctors can't find anything wrong with my eye just now. Initially they found inflammation at the back of my eye and laser surgery was performed on this to resolve it. Now the doctors says there is no inflammation there and looks fine. Although I still get severe pain in the eye and swelling around my eyebrows and blurry vision. I think it looks like its autoimmune to ...

Finally, at least relief from something with CFS. My neurologist told me to take 400 mg of RIBOLAVIN....VITAMIN B-2......no less......and boom NO MORE HEADACHES. Wish someone told me that a long time ago! Had them for 30 years and tried everything. Must take it daily to PREVENT them. Taking this during the headache does nothing. It prevents them. When I googled this.....it was everwhere "riboflavin 400 mg for headaches". Let me know if it works ...

Please help advise....

Has anyone had experiences with both of these meds?? Could you share your POSITIVE :-))) hopefully, experiences with them?? Which one worked better for you and why?? What dose? Thank you kindly in advance for taking the time to answer. Gayle

Has anyone gotten help with the cognitive problems of CFS with ANY medication??? I have been debilitated for 30, yes 30 years with CFS and tried countless things with doctors all over the country. seroquel at a much higher dose than that used for sleep cleared my brain for three months and then I lost its effect. Yes, I gained a ton of weight but I do not care anymore about that as I just ...