Last 10 active topics

Please help advise....

Has anyone had experiences with both of these meds?? Could you share your POSITIVE :-))) hopefully, experiences with them?? Which one worked better for you and why?? What dose? Thank you kindly in advance for taking the time to answer. Gayle

CFIDS: Chronic Fatigue And Immune Dysfunction Syndrome. That's what it stands for, that was my first diagnosis. My ANA was positive, 1:320 homogeneous for autoimmune disease. Positive for EBV. I was told that I had CFS and autoimmune dysfunction, and that my body was attacking itself, and that could count on being sick the rest of my life. My next doctor shrugged this diagnosis off, and diagnosed fibromyalgia "as he didn't know what else could ...

After years upon years of going to battle with fibromyalgia, CFS, depression and anxiety, I have finally found a medication regime that works. Not only does it work, but my quality of life has been consistantly greater than I can remember. There is only one catch, which when is there not, and that is the fact that it is labelled as a controlled substance. A Scarlet Letter that stamps discrimination to the very nature of ...

Hi - just joined up because my 17 year old daughter has moderate to severe CFS and Fibromyalgia and I am desperate for information and help.

She is under a CFS consultant immunologist who has prescribed weekly, vitamin B injections, L-Carnitine, Echinacea and Feverfew (say prescribed but obviously only the injections are on the NHS). She suffers with the whole range of symptoms but pain is the real killer - so her G.P. put her ...

Have been taking Anafranil (Chlomipramine Hcl) for 20 years now and it has given me back 60-70% of my energy after not being able to walk 100m some days. Have tried other anti-deps from time to time but nothing has the same effect (Prozac, Wellbutrin, Effexor, Cypramil) in fact they all made me feel WORSE within 3 days and I stopped them. Was taking Anafranil at same time on lower dose under psychiatric supervision. Tried ...

Hi Everyone!
New drug that helps CFIDs patients! Naltrexone is a legally prescribed drug used in high doses (50mg) to treat withdrawal from opiate drugs like heroine. In low doses (1-4.5 mg), this drug regulates the immune system and helps get out of balance hormones back in balance. I took the lowest dose ONE night and feel so much better, I can't wait until I get to the 4.5mg. My doctor @ The Fibromyalgia and ...

Dear all,
After being diagnosed CFS by 2 specialists in hospital, I have spent the last 2 years in very good shape thanks to the following treatement : rispéridone à 0.5mg/day.
Risperidone is an antipsychotics, I am not psychotic nor depressed. But it works.

The pharmacological aspect of this treatment is the following :
at low dose, antipsychotics drugs like rispéridone boosts the dopaminergic neurons, leading to nearly full reduction of fatigue (physical and cognitive ...

hi great idea to have a forum, sharing tips and giving support is so essencial with this condition,
thank you ashok your programme helped so much it got me to my daughters graduation and i actually enjoyed myself!
can i ask if anyone has been prescribed tapiramate(topamax) for pain/migraines?
i was prescribed it as a better alternative to co-codamol but have been ill with it, very short of breath and skin feels like its burning ...

or other benzodiapzipines. I was prescribed this at a UK hospital for cfs/fms to help with insomnia and restless legs. I said I didn't want to take a drug famous for it's addictive tendencies but was reassured it was a small dose of a mild tranquiliser. This was not true. Sure it helped a lot with both and some of the pain but over 9 years I got droopier and droopier, even less able to ...

HI
Wondering if anyone is using Immunovir to enhance their immune system to fight viral infections. This drug is not currently sold in the US but it can be imported for personal use if prescribed by your physician. You take it on a schedule of 1 tablet twice per day for one 5 day period (typically Mon-Fri). Then you're off on the weekend and the following week. Then you start another round the 3rd week ...