Then a new GP was horrifed to see I was on it, and over time he and others told me the clon dose I was taking was the equivalent of 20 mg valium every night. It's taken me 9 months of utter hell to get off the stuff [by substituting valium which stays in the body longer and so tapering off is supposed to be less painful, ha ha] and that was far too fast. 7 months later I have never felt so ill or been in so much pain. However I do now have much more energy, which I cannot really use due to pain. I wish I had never been to a specialist cfs clinic now, and so does my GP.
Most people have these problems with this drug, it's a rare one that gets off scot free and the longer you take it the worse it will be. So don't take it, and if you are on it take good advice using the Ashton protocol to get off it, and go slower than you think you need. The problems I had before were nothing compared to this, although I wasn't bed bound. However the withdrawal effects included an inability to walk which lasted nearly a year. I now look forward to the familiar routine of 'merely' being ill with cfs again if I ever recover from this drug's effects.
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