Co-Dydromol for CFS/Fibro

[CFSMum]

Hi - just joined up because my 17 year old daughter has moderate to severe CFS and Fibromyalgia and I am desperate for information and help.

She is under a CFS consultant immunologist who has prescribed weekly, vitamin B injections, L-Carnitine, Echinacea and Feverfew (say prescribed but obviously only the injections are on the NHS). She suffers with the whole range of symptoms but pain is the real killer - so her G.P. put her on Co-dydromol. She was on 2 tablets four times a day which I think is the maximum dose, but really struggled with nausea so she has reduced it to 3 times a day. I am concerned that this is still a high dose of a seriously strong analgesic and I can't find anything which suggests that it is actually any good for CFS/Fibro... all the other over-the-counter medications for pain don't touch it.

Has anyone else been given co-dydromol? We are due back at the consultant in a couple of weeks and it would be good to know what has helped others.... so I know what might be good to ask about. We had 2 years of blood tests for Glandular Fever etc etc which all came back negative and it was only when I spat the dummy and insisted on a referral that we had the additional tests which led to her diagnosis... so I'm not very keen on just sitting back and seeing what is offered.

Any comments and advice would be appreciated,
Thanks

[grewgood]

CFSMUM, CFS for 24 years and been through it all. I have hundreds of vitamin and supplement bottles of every type.... Co-dydromol is pain killer. Wont do a darn thing in the long run I am sure. I am now being treated by Dr C L Jardin's husband Dr Gerin, for systemic reckettsia, Lymes and Toxoplasma. 7 day strong doses of tetracyclines every thirty days. First time in 24 years that I am starting to see symptoms reduce and more energy than any time in last 24 years. See her website here

http://chronicfatiguesyndrome.co.za/

[susan55]

CFSMUM, CFS for 24 years and been through it all. I have hundreds of vitamin and supplement bottles of every type.... Co-dydromol is pain killer. Wont do a darn thing in the long run I am sure. I am now being treated by Dr C L Jardin's husband Dr Gerin, for systemic reckettsia, Lymes and Toxoplasma. 7 day strong doses of tetracyclines every thirty days. First time in 24 years that I am starting to see symptoms reduce and more energy than any time in last 24 years. See her website here

http://chronicfatiguesyndrome.co.za/

I went to the link and it was a book????
Does she have a link for her patients or future patients?
What city is she in?