Chronic Fatigue Syndrome and Fibromyalgia

miguelfv · Posted: Tue Jun 10, 2008 8:37 am Post subject: some questions

I want to expose my situation, my girlfriend have the CFS illness. I want to get the opinion of people that have this illness or people that have cured of this illness. I want this information because I want to get more information about this illness, not online the studies texts or oficial description, I want to know the experience of the people.

Thanks for all.

mike4u · Posted: Tue Jun 10, 2008 11:29 am Post subject:

do you want to know if people have been cured of cfs?
if so, some people have but there is really no standard treatment for people that have it. Everyone seems to be very different and different things help different people.

Some treatments that help are

Simplified Yasko
http://www.chronicfatiguetreatments.com/wordpress/treatments/yasko-protocol-simplified-approach-for-chronic-fatigue/

Valcyte
http://www.chronicfatiguetreatments.com/wordpress/treatments/treatment-of-chronic-fatigue-syndrome-with-valcyte/

Gupta
http://www.chronicfatiguetreatments.com/wordpress/treatments/amygdala-retraining-gupta-program-interview/

Martin Pall
http://www.chronicfatiguetreatments.com/wordpress/treatments/interview-with-dr-martin-pall/

miguelfv · Posted: Tue Jun 10, 2008 1:43 pm Post subject:

Well, not only people that have been cured, I want to know the experience of people that have had this illness, read diferent points of view about this illness.

I know that in this moment don't exist a concret treatment, I know the theorical aspects of this illness, but I want to know how the people life with this illness, what is the progesion since theses persons begin a treatment, etc.

Thanks for all.

Tina · Posted: Tue Jun 10, 2008 5:56 pm Post subject:

Ive been sick for about 10 years. The illness doesnt really progress. At least for me it hasnt. Its improved slowely, because ive found certain supplements that help my symptoms.
I think there is more understanding now about the illness than when i first got sick. When i first had problems about 50% of doctor belived in it. Now i would say it is about 80-90%. Not that they know how to treat it though.

If you are looking for treatments you have to find a dr. that uses traditional and alternative treatments, because there are really very good traditional treatments right now

miguelfv · Posted: Wed Jun 11, 2008 6:59 am Post subject:

thank you, I know that, also she is in a medical treatement , I only want to know the experience of the other people.

Thanks tina!.

Liz · Posted: Fri Aug 29, 2008 12:57 am Post subject:

i was given antidepressants - they made me sick. I have cfs about 4 years now - it seems to get worse. I have some bad days and relly bad days. must learn to pace yourself. she will wor for her self what she can and can not do. usually by trial and error and by over doing it. You dont know whats too far till you push yourself there.
There is not a lot you can do for her to be honest except help her with simple tings that may wear her out - like make he bed - take the bins out etc - these things make me so tired its silly. i feel so useless. get her to reat banaas too they help and avoid caffine to wake up - will not work - makes you worse. Read other posts on the forum too - theres a ot of info here

Rowena · Posted: Fri Sep 12, 2008 3:22 am Post subject:

Please dont give up on her.I have a partner and two small kids it is really hard because he doesnt want to know and when I lie on the couch he still expects me to clean the house. i work full time and cant do much more.Dont give up and believe her when she says she is tired, hold her when she cries because nothign works... it is a very lonely place CFS,even when the weather imprves around you

kenvj · Posted: Fri Sep 12, 2008 3:42 pm Post subject:

miguelfv - there is more than enough information already on the site, all you have to do is read it.

Chronic Fatigue Syndrome and Fibromyalgia

some questions