Chronic Fatigue Syndrome and Fibromyalgia

cfssucks · Posted: Tue Apr 01, 2008 8:23 pm Post subject: The Recovered?

I wish there were a thread for people who were fully recovered to post what worked for them. what made them better. Has anyone fully recovered who would be willing to post here: ie....what got you better, how long it took etc? thanks

Chronicfatiguetreatments · Site Admin

i think the thread would be pretty short.
I do know 2 people that recovered though. One of my doctors had chronic fatigue and got over it after he got treatment for a viral infection.

He also said one of the keys to him recovering was keeping a sleep schedule. Waking up early everyday and going to sleep at the same time everyday. (ive been doing that lately and i been sleeping the best i have in years)

Also the second person that i know had cfs since she was young, and she recovered after taking a regemin of anti oxidant supplements and eating a low carb, no sugar diet.

Everyone seems to be so different

vegasv · Posted: Fri Apr 04, 2008 10:43 am Post subject:

i know that dr. martin pall also recovered. He used antioxidants like coq10 and alpha lipoic acid.

At least there are some people that have recovered, gives me a reason to keep takig all of these vitamins

summerrose · Posted: Fri May 09, 2008 7:00 pm Post subject: Re: The Recovered?

I have nearly fully recovered and joined just now to see if I could spread the word about anything that has helped me. I am going to check the forum out first and see what things pique my interest to respond to. I feel it is important for the people who recovered to spread the word because the scientists and doctors aren't fixing this.

Chronicfatiguetreatments · Site Admin

youve gotta let us know, i feel like im on the right track with the amy yasko protocol. The Yasko protocol and keeping a sleep schedule (wake up early everyday , go to bed at the same time)
Those are helping alot, but if i sleep in a little or miss some vitamins, i go backwards.

kissaragi · Posted: Sat May 10, 2008 2:40 pm Post subject:

The recovered or "lucky bastards" as i like to call them Wink

Would be good to hear whats helped tho

Rafiki · Posted: Mon May 19, 2008 11:38 am Post subject: Re: The Recovered?

I consider myself recovered.

I was diagnosed with CFS when I was 10 years old, I am now 26. I was out of school completely for a year and went gradually back to full-time. I went back to full time at age 13, but still ended up missing a lot due to sick days.

When I was diagnosed the doctor told my mother that I had to take extreme care not to over-do it or I could be sick my whole life. That scared my mother into pulling me out of school. I was always a "go go go" type of personality, but had to teach myself that whenever I felt the least bit tired I had to stop whatever I was doing and rest.

At some point my doctor also had me take high doses of Vitamin C: 2,000 mg on "good" days and 10,000 mg on "bad" days. I kept this up for a few years, but no longer take it.

Am I "fully recovered?" I'm not sure. I'm still cautious about overexerting myself (probably from habit) and almost always allow myself 9 hours of sleep at night. Sometimes I need more like 10 to 12 hours of sleep. Is my need for extra sleep due to residual chronic fatigue or do I just need more sleep than most people? Long story short--I do consider myself one of the lucky ones who got over CFS.

vegasv · Posted: Mon May 26, 2008 3:14 pm Post subject:

ive also heard of people recovering from antioxidants and low carb diet. I had a doctor that really stressed a low carb diet, because it would reduce free rdicals

Maynard · Posted: Sat May 31, 2008 11:56 am Post subject:

i'd say i'm towards 70-80% recovered, and rising right now

things which have worked for me:

B12 (hydroxocobalamin) taken nasally - little/no effect from oral supplements... my brother got better with v.high dose injections; nasal absorption produces a noticable boost of energy, and a general trend for increased activity over weeks/months

Mitochondrial support - CoQ10 (300mg), Acetyl-L-Carnitine (1-2g), D-Ribose (8-15g), Niacinamide (500mg), Magnesium (300-400mg)... speeds up recovery... since taking these, i've avoided the real lows of fatigue - where even breathing feels like an effort - and only had managable fatigue; which is more like severe sleepiness... better recovery from exercise... seems you need to be on these for at least 6 months to see real results (Dr Myhill got me onto these, and can test for specific issues)

Vitamins and minerals - BioCare multivitamins and minerals (the high dose B vitamins in the adult multivitamins give me a much needed boost of energy and lower anxiety symptoms); also Omax3 or VegEPA omega 3

Detox - i picked up an FIR sauna on ebay for about £90... one of the best ways to detox heavy metals as long as you shower straight away afterwards... one study found people in japan could be effectively cured with a month of daily saunaing... if there's a toxic cause, this may well be the case... i notice a real improvement from regular saunas, but became *aware* that i may be losing minerals (centrally, magnesium) and not replenishing them adequately - so i've cut this out for now while i replenish magnesium

Methylation cycle supplements - very interesting; Folapro seems central to this... seems to induce viral symptoms, which is a v.positive sign, as it suggests the immune system's kicking in... worth looking into - has produced very positive results... i only take the Folapro when i feel able to tolerate it, but take the B12 and Folinic Acid regularly (with Betaine HCL often) to raise glutathione levels

** NUMBER 1 **

Magnesium by skin absorption

my own most obvious symptom of low magnesium is an inability to take a deep/easy breath... i could tell magnesium applied to skin worked straight away because within minutes of applying a small amount, i could breathe deeply again

i use a big tub of powdered Magnesium Chloride and mix it about 1 part magnesium to 3 parts water, then apply in very small amouts (at first) to the skin: under armpits and on sore/stiff muscles seems best

i've tried Magnesium oil too - which is evaporated sea water - but seems too stimulating (possibly issues with impurities too)

initially i found the effects of just a few drops applied to skin too stimulating... more so than B12... it felt like a nervous anxiety, but eases after an hour or so anyway

but after a few days, and watering it down further, the feeling becomes easier; more like a general well being and slightly sped up feeling... asthma symptoms resolve very quickly after taking it, and a chronic cough i've had for 2 years seems almost gone after just a few days of this

many specialists suspect mg deficiency may be the number 1 cause and effect of fatigue syndromes, as it's very hard to identify accurately with blood tests, and very unreliable to treat with oral supplements

by applying it to the skin, you boost your blood and tissue levels quite rapidly, and pee out any excess... the best way to test for a deficiency is to take magnesium and test for how much the body holds on to - how much is pee'ed out... so by keeping levels high with skin absorption, your body can start to replenish tissue levels

the only concern i'm aware of is if you've got kidney problems, and might not be able to remove excess so easily

i've no idea how long it take to get the whole body replenished, but i think after a week of regular use with a mg chloride or epsom salts (not tested this yet myself - although there have been clinical trials) solution, tissue levels should have improved significantly

getting enough sunlight or taking D3 supplements seems critical too in helping the body utilize and absorb magnesium... (i always noticed i felt better when i'd had a lot of sun)

with all of this! even if you do get much more energy, the key is not to use it, because the whole body, right down to the level of the cells, will need time to recover/repair and rebalance... so i'd still suggest at least a year spent very gradually getting activity levels towards normal, with as much rest as possible when not busy, and total rest when you do get the inevitable lows (viruses, etc.)

Dr MyHill's been core to me getting my own treatment approach right... i now suspect magnesium alone might have cured me on its own, but the B vitamins and Ribose and things have eased the journey considerably

Ellien · Posted: Thu Jun 05, 2008 12:31 pm Post subject: The recovered?

I have been greatly helped on the road to recovery from CFS by Dr. Sherwood, who treats backs. He is the only professional I am aware of who understands the connection between back pain and CFS/ME, and who, by treating the cause (via the back to the nerve ganglia and on to the sympathetic and para-sympathetic nervous systems, and to the Hypothalamus) cures CFS/ME. His book Your Back, Your Health explains everything, and on his website www.DrSherwood.co.uk you can find a lot of information explaining his thinking. If this treatment was available on the NHS (physiotherapists could deliver it) we would not all (in the UK) have to go on suffering and struggling. Dr. Sherwood's techniques are going to be available in New Zealand before long....

In addition, I discovered EFT via a post on the Gupta website, and, lo and behold, I am amazed at the effect of "Tapping" on my various symptoms - which are in any case well on their way to recovery as my back is doing its own work now that it has been fixed. Check out EFT for its effects on the brain and energy systems. Unlike Western medicine which views illness as a problem in the blood, EFT is based on Chinese medicine, which relies on the notion of Chi (energy), that is, electricity in the body.
EFT addresses blockages in the transmission of energy, which cause pain and illness. Blockages are emotional in origin, and so when using EFT you can expect to be working with emotions as well as physical problems.

The emphasis on this website is very much on pill popping, albeit of the vitamin and supplement type. Nonetheless, I think it suggests that people who go along this route to regaining health are supporting the notion that the problem is a chemical one and can be found in the blood. I personally do not subscribe to this school of thought, based on my experiences with Dr. Sherwood and with EFT.

Ellien · Posted: Thu Jun 05, 2008 12:33 pm Post subject: The recovered?

I have been greatly helped on the road to recovery from CFS by Dr. Sherwood, who treats backs. He is the only professional I am aware of who understands the connection between back pain and CFS/ME, and who, by treating the cause (via the back to the nerve ganglia and on to the sympathetic and para-sympathetic nervous systems, and to the Hypothalamus) cures CFS/ME. His book Your Back, Your Health explains everything, and on his website wwwDrSherwood. co. uk you can find a lot of information explaining his thinking. If this treatment was available on the NHS (physiotherapists could deliver it) we would not all (in the UK) have to go on suffering and struggling. Dr. Sherwood's techniques are going to be available in New Zealand before long....

In addition, I discovered EFT via a post on the Gupta website, and, lo and behold, I am amazed at the effect of "Tapping" on my various symptoms - which are in any case well on their way to recovery as my back is doing its own work now that it has been fixed. Check out EFT for its effects on the brain and energy systems. Unlike Western medicine which views illness as a problem in the blood, EFT is based on Chinese medicine, which relies on the notion of Chi (energy), that is, electricity in the body.
EFT addresses blockages in the transmission of energy, which cause pain and illness. Blockages are emotional in origin, and so when using EFT you can expect to be working with emotions as well as physical problems.

The emphasis on this website is very much on pill popping, albeit of the vitamin and supplement type. Nonetheless, I think it suggests that people who go along this route to regaining health are supporting the notion that the problem is a chemical one and can be found in the blood. I personally do not subscribe to this school of thought, based on my experiences with Dr. Sherwood and with EFT.

Chronic Fatigue Syndrome and Fibromyalgia

The Recovered?