Chronic Fatigue Syndrome and Fibromyalgia

nocfs · Posted: Mon Jul 03, 2006 8:11 pm Post subject: This Protocol is horrible

Ive tried this protocol, but was unable to keep on it because you have to AVOID SUNLIGHT for atleast 2 years. This is unbielievable. That is pretty much an impossible task, especially when there is no guarentee that it will help at all. Ive been reading about it and it doesnt seem like anyone is really improving at all from it. There would need to be a really good incentive to stay on this protocol for so long

dean · Posted: Wed Jul 05, 2006 3:27 pm Post subject:

I feel the same way about it. If there was some proof that this would fix me i would sacrifice seeing the sun for a couple years. But for now i think ill just look for something else

Moxie · Posted: Tue Jul 25, 2006 4:45 am Post subject: MP is helping me so much!!

So after nearly 23 years and being almost 60, I found a treatment that is working for me. I have been on MP for sixteen months now and it has been worth every effort and cent I have spent!!
Living in very sunny Queensland Australia is a VERY difficult thing to keep out of the sun as we have sun almost every day of the year and IT IS SO HUMID IN SUMMER.
But my D levels were very high and indictative of inflammation exacerbated by the sun and Vit D foods.
I think most people need to get their head around their own symptoms and find out if they actually have chronic infections. I had tests that indicated that fact e.g. elevated urinary cortisol levels, elevated C reactive protein levels, I was catabolic (chewed up my own muscles) and these are markers for infection.
If you don't have any infective markers, MP is probably not for you.
But, I am powering ahead since I entered Phase 3 which means 3 abx over a ten day period. They are not huge doses of abx - probably more a homeopathic dose and very judiciously researched for safety.
I can't begin to tell you how thrilling it is to be gaining back some quality of life!! Razz

[quote="nocfs"]Ive tried this protocol, but was unable to keep on it because you have to AVOID SUNLIGHT for atleast 2 years. This is unbielievable. That is pretty much an impossible task, especially when there is no guarentee that it will help at all. Ive been reading about it and it doesnt seem like anyone is really improving at all from it. There would need to be a really good incentive to stay on this protocol for so long[/quote]

jaykay · Posted: Tue Jul 25, 2006 10:09 am Post subject: Re: MP is helping me so much!!

Glad to see that you are doing well on this protocol, especially after 23 years of being sick!! It just goes to show what a strange illness this is and that for people who respond to one thing, other will not neccisarily do the same. I found a link to an audio file where the doctors from the CDC who did that genetic study, talk about about 5 different sub groups in Chronic Fatigue Syndrome
This is about a couple months old, but if you havent listened to it yet. It is definatley work checking out
[url]http://www.videonewswire.com/cdc/33494/event.html[/url]
But good luck with your treatments and keep doing what works for you.

[quote="Moxie"]So after nearly 23 years and being almost 60, I found a treatment that is working for me. I have been on MP for sixteen months now and it has been worth every effort and cent I have spent!!
Living in very sunny Queensland Australia is a VERY difficult thing to keep out of the sun as we have sun almost every day of the year and IT IS SO HUMID IN SUMMER.
But my D levels were very high and indictative of inflammation exacerbated by the sun and Vit D foods.
I think most people need to get their head around their own symptoms and find out if they actually have chronic infections. I had tests that indicated that fact e.g. elevated urinary cortisol levels, elevated C reactive protein levels, I was catabolic (chewed up my own muscles) and these are markers for infection.
If you don't have any infective markers, MP is probably not for you.
But, I am powering ahead since I entered Phase 3 which means 3 abx over a ten day period. They are not huge doses of abx - probably more a homeopathic dose and very judiciously researched for safety.
I can't begin to tell you how thrilling it is to be gaining back some quality of life!! Razz

[quote="nocfs"]Ive tried this protocol, but was unable to keep on it because you have to AVOID SUNLIGHT for atleast 2 years. This is unbielievable. That is pretty much an impossible task, especially when there is no guarentee that it will help at all. Ive been reading about it and it doesnt seem like anyone is really improving at all from it. There would need to be a really good incentive to stay on this protocol for so long[/quote][/quote]

Moxie · Posted: Wed Jul 26, 2006 5:43 pm Post subject: Re: MP is helping me so much!!

Thanks for that link Jaykay. Hopefully I can listen to it on someone else's Broadband download - I only have dial up. But it seems 'how long is a piece of string/ when it comes to fatigue disorders - not all caused by the same thing and certainly not all treatable the same way. I just feel so lucky to have found the ONE thing that has worked very well.
Good luck everyone in your search.

Moxie

[quote="jaykay"]Glad to see that you are doing well on this protocol, especially after 23 years of being sick!! It just goes to show what a strange illness this is and that for people who respond to one thing, other will not neccisarily do the same. I found a link to an audio file where the doctors from the CDC who did that genetic study, talk about about 5 different sub groups in Chronic Fatigue Syndrome
This is about a couple months old, but if you havent listened to it yet. It is definatley work checking out
[url]http://www.videonewswire.com/cdc/33494/event.html[/url]
But good luck with your treatments and keep doing what works for you.

[quote="Moxie"]So after nearly 23 years and being almost 60, I found a treatment that is working for me. I have been on MP for sixteen months now and it has been worth every effort and cent I have spent!!
Living in very sunny Queensland Australia is a VERY difficult thing to keep out of the sun as we have sun almost every day of the year and IT IS SO HUMID IN SUMMER.
But my D levels were very high and indictative of inflammation exacerbated by the sun and Vit D foods.
I think most people need to get their head around their own symptoms and find out if they actually have chronic infections. I had tests that indicated that fact e.g. elevated urinary cortisol levels, elevated C reactive protein levels, I was catabolic (chewed up my own muscles) and these are markers for infection.
If you don't have any infective markers, MP is probably not for you.
But, I am powering ahead since I entered Phase 3 which means 3 abx over a ten day period. They are not huge doses of abx - probably more a homeopathic dose and very judiciously researched for safety.
I can't begin to tell you how thrilling it is to be gaining back some quality of life!! Razz

[quote="nocfs"]Ive tried this protocol, but was unable to keep on it because you have to AVOID SUNLIGHT for atleast 2 years. This is unbielievable. That is pretty much an impossible task, especially when there is no guarentee that it will help at all. Ive been reading about it and it doesnt seem like anyone is really improving at all from it. There would need to be a really good incentive to stay on this protocol for so long[/quote][/quote][/quote]

jaykay · Posted: Thu Jul 27, 2006 12:51 pm Post subject: Re: MP is helping me so much!!

[quote="Moxie"]Thanks for that link Jaykay. Hopefully I can listen to it on someone else's Broadband download - I only have dial up. But it seems 'how long is a piece of string/ when it comes to fatigue disorders - not all caused by the same thing and certainly not all treatable the same way. I just feel so lucky to have found the ONE thing that has worked very well.
Good luck everyone in your search.

Moxie
[/quote]

I ve tried the garth nicholson protocol with some mixed results. It is kind of similar with the antibitoics, but minus the benicar. With the Nicholson protocol i felt sick at first, (really sick) and after i while i started having a really good improvement. Then kindof out of nowhwere i just totally crashed and went back down to where i was before. I am still taking the antibiotics, but im not really sure if it is helping anymore. Im a little intimidated my the marshall protocol because it seems like a pretty serious commitment. But i guess if it really works them its worth it

SDD · Posted: Tue Nov 27, 2007 6:28 pm Post subject: RE: Marshall Protocol

I'm currently on this protocol and have been for over a year. I am thrilled with the success I've made so far. Cool

Already I've noticed that my POTS (postural orthostatic tachycardia syndrome) is better and my food sensitivities have disappeared !

Yes, it takes work. An acupuncturist told me once that for every year someone has been ill, to expect at least a months worth of acupuncture treatments. I didn't get ill overnight and I know that there is no magic pill to cure me (unfortunately). It takes hard work and people who choose to get on this protocol, need to ask themselves if they can make that sacrifice & commitment before they start. For me, it is definitely worth it.

sueandangie

Hello,

I am looking for someone to give me phases II and III for the marshall protocol. I want to start taking it but they keep kicking me off their web site for asking questions.

- Susan

sueandangie

Hello,

I am looking for someone to give me phases II and III for the marshall protocol. I want to start taking it but they keep kicking me off their web site for asking questions.

- Susan

sueandangie

Hello,

I am looking for someone to give me phases II and III for the marshall protocol. I want to start taking it but they keep kicking me off their web site for asking questions.

- Susan

vegasv · Posted: Fri Apr 25, 2008 10:44 am Post subject:

i thought it was a little strange how they didnt give acess to the 2nd -3rd phase of th forums. that is what i would be interested in the most. I want to see how the people are doing who have been on it for a long time

Chronic Fatigue Syndrome and Fibromyalgia

This Protocol is horrible