I do alot of reading about all of the latest cfs news and I come across alot of talk about changing the name of chronic fatigue syndrome to another name that sounds more scientific and wouldnt label cfs patients as only being fatigued. I dont think that this is a very good use of money, time and effort. The acceptance of chronic fatigue depends on quality scientific research coming out that correlates symptoms to a specific malfunction in the body that can be tested. More research is coming out all of the time and studies like the cdc’s genetic study is what really speaks to people. I have to admit, chronic fatigue does sound like a strange illness, and is probably hard for people that arent sick to relate to it. Whether its called CFS, Chronic Fatigue syndrome, or Myalgic encephalomyelitis, people are still gonna look at you and think you arent that sick, because you dont look sick. For now i think we should be concentrating on things that can actually help cfs patients feel better. Things like the methylation cycle block theory which is something new and different that has some science behind it. I see the name change as a way for people to not feel self-concious about being sick with an illness that people dont understand. Changing the name isnt going to help, only solid research will bring understanding by the public.

This entry was posted on Tuesday, May 22nd, 2007 at 3:21 pm and is filed under Name Change, Treatments. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.