Chronic Fatigue Syndrome Blog

HPA Axis and Sleep Schedules

Recently ive seen a doctor who has recovered from Chronic Fatigue Syndrome.

It turned out that he had an Epstein Barr infection and once he was treated antiviral drugs, he felt somewhat better, but was still sick.

The thing that he told me helped him to fully recover was keeping a strict sleep schedule. Waking up early and going to sleep at the same time every night. He said that this was one of the most important things in his recovery.

If it worked for him, i thought it might work for me. I didnt think it would help, because all CFS patients seem to be really different. But i gave it a shot.

I started waking up at 8:00am and going to sleep at midnight every night. Making sure to get as close to 8 hours sleep a night as possible (no more, no less).
My goal with this new schedule was to normalize my sleep patterns, and hopefully my circadian rhythms and hpa axis.

Since ive been on the yasko protocol supplements (and klonopin & benadryl), ive been able to get a full nights sleep. But i have a tendency to oversleep, and have a really hard time waking up. My schedule was horrible, i would go to sleep anywhere between 1:00am-3:00am and sleep till 10:30 oo 11:30.

But, after a couple weeks of sticking to this schedule (and staying on the Yasko supplements), my sleep is much improved. My concentration also started to improve. I get weird bursts of energy, where my body feels warm, my muscles relax (my muscles are always really tense), and my concentration improves. I feel almost well sometimes, but it doesnt last.

I think it has to be some kind of improvement in hormonal function, because i cant think of anything else that would come in bursts like that. I know that the HPA axis, insomnia, and CFS are all related, so it makes sense to me that maybe my HPA axis might becoming more normalized.

So whatever those energy bursts are, i need more of them. Im hoping for slow steady progress. The yasko protocol combined with this sleep schedule seems to be leading on the right path. So far ive been on the schedule for 1 1/2 months and i hoping with more time, ill have more improvement.

5 Comments »

Comment by Jenna

April 23, 2008 @ 12:50 pm

One thing to try might be shifting your go to sleep time to 10pm. I’ve heard that any time after that, and you mess with the melatonin and other biorhythms.

I’ve been doing well with 8:30pm-6:30am, but I might be a little extreme ;).

Comment by matthew sanca

May 13, 2008 @ 3:34 pm

It was interesting to read about the doctor who overcame his
csf, induced by Epstein Barr virus, by using anti-viral drugs.
I live in the UK, and also suffer with cfs. My blood test revealed a high level of Epstein Barr virus, but the doctors simply ignore it, saying it does not cause the fatigue, and wouldn`t dream about using the anti viral drugs, to at least try
to improve my state of health. Some situation this is! Has anybody got a helpful suggestion regarding this?

Regards,
Matthew Sanca,
London, UK

Comment by morgan viera

May 17, 2008 @ 10:49 pm

This physician, Dr. Lerner, specializes in CFS caused by EB-he had/has it himself but was/has been able to treat himself using antivirals. He’s in the US, but maybe he can refer you to someone in the UK. His studies are also on the website, with protocols, so maybe you can find a dr. in the UK who would follow them:
http://www.cfsviraltreatment.com/

The Valcyte protocol (for people with high EB and HHV-6 titers and CFS) has also been helpful according to a researcher at Stanford, Dr. Montoya-more info is available here:
http://www.hhv-6foundation.org/index.html

If you cannot get help in the UK, maybe you should consider going elsewhere if you are able-the UK has a very bad reputation for its treatment of people with CFS. Good luck-I hope that you get the help you need!!

Comment by Dan

June 9, 2008 @ 12:56 pm

Surprisingly to some, many people have completely recovered from CFS/ME. Yes, it is rare, but it does happen. I know 3 people in my local CFS group who are now completely healthy. One was sick for 17 years and could not leave her home.

And here’s a link to an interview with Martha Kilcoyne, a woman who was bedridden with CFS, and celebrated her recovery several years later by climbing MT. KILIMANJARO. She’s been healthy for the last 10 years.

Here’s the link:

http://phoenix-cfs.org/IntKilcoyne.htm

Here’s to “better” days for all of us,

Dan

Comment by Dan

June 24, 2008 @ 4:57 pm

I guess I should’ve stressed the point of my last comment: One of the MAIN keys to Martha’s complete recovery is that she slept 10 hours a night, then took a two hour nap EVERY DAY for a year, until she was better.

If she felt better and felt more ‘energy’ on a particular day, her husband was there to make sure she still got that 10 hours of sleep a night, and took naps every day.

d.

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